[Kells1]

#1172019

Bobbi wrote:

To Kells1: I would suggest you edit your great list about how to cope with TED. You put on it that folks need a couple of pillows to elevate the head. While we do often need our head elevated to reduce overnight swelling, using pillows can throw off some folks’ spines. Our heads can often be more safely elevated by putting wood blocks or something similar under the head of the bed. If your bed sits on one of those metal frames for instance, it is not too hard to put a touch of height at the head end of things. That way your spine is fully supported and not “bent” (folded, mutilated or spindled….)

@Bobbi – Done.

[beach45]

#1172022

Catstuart, your welcome! You bring up good points about the doctors. I see it as I do want them to be good at what they do and the compassion thing is an added extra; because if just compassionate yet not the best at what they do I don’t want that either. Yet for patient healing it is good if there is a good mix of expert in the field and compassion. This is what I strive for and I wish that female endocrinologist had never left my area! I’m going to hang in there with this and not sure yet if I will move to another endo because for now post RAI I’d like to follow through a bit with my current endo. I want to give things a chance and I can at times be a bit impatient with getting to where I want to be and being on MMI for 20 months has taught me a great lesson in patience so far.
I hope that it all works out well for you with your eye situation as I know this thing can get frustrating and it sounds like you have a very good eye doctor too! Take care….beach45

[rapunzel]

#1172023

You have a right to ask to be seen if you feel your condition might have worsened. If he says no, he says no. Ask him when he reasonably expects to see you again. Ask him what symptoms/signs (and what level of severity) would indicate that you should call him sooner than that. He might not respond to your anxiety (shame on him) but he should respond to your specific questions for clear guidelines on how to be proactive about your own medical care.

If he won’t answer reasonable questions, consider finding a doctor who will.

Information beats fear every time. A total lack of information can be terrifying. Get information from your doctor. The last thing a Graves patient needs is more stress.

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