[lizzycat]

#1073751

I have a comment about Doctors, hospitals, tests, etc. Always have your own copy of EVERYTHING and check with your doctors office before your appointment to make sure they have gotten your records. This is based on my own experience of no records and thrown away ct scans. Good luck and hang in there.

[sarabear0508]

#1019733

Hi All,

For those of you that have been following me and my story I have been waiting a WHILE to see the endocrinologist. On tue of this wk I finally got in to see her. I waited an hour and a half (2 hrs by the time the doc came in)the waiting room NO JOKE! The doc comes in and says she’s sorry because they had a fire drill. I was very gracious and understanding. Then she asks me why I am here!!! YEA! I go… well don’t you have my medical record with my labs and tests? I was diagnosed with Grave’s back at the end of November and now I don’t know what to do. She tells me she has NO FILE ON ME! The doctors office NEVER sent over my records. So I waited that entire time with no results. I couldn’t get another appt for 5 more months…and this is the only place my insurance covers. My thyroid scan done in November shows my entire thyroid was lit up. My tsh at that time was .14 I believe( I know it was 20 pts below normal.) I called my doctors office and today they sent over the record. BUT here is the catch. The last to labs I had – one in Jan and one in Feb – both show I’m within the normal range. In Jan I felt terrible. Now in Feb I am actually feeling a lot better….I’m not healed but I can see tangible things changing for the better. So the doc has a few theories since she didn’t see any of my file. First, is that I don’t have Grave’s but hyperthyroid and that my levels are working back to normal….or that I do have Grave’s and have possibly reached a remission. I am SO SO SO confused. She said I may be Euthyroid. See I became hyperthyroid with bad symptoms after my pregnancy that resulted in the loss of my new born baby boy. Then as soon as I got out of the hospital I started going through a HORRIFIC divorce in which I was seriously physically abused not to mention all the mental anguish. My divorce was final in December and it has taken until now for me to even relax physically and be able to care for myself. My beautiful three year old keeps me on my toes to say the least. He is my blessing and my strength. I believe that now my body is starting to heal because they enormous levels of physical and mental stress are gone. I was also working many hours during that time and I just recently lost my job. I thought loosing my job was the worst things. Now I believe that is was a blessing in disguise because I have been able to get endless rest and relaxation. Since my levels are normal I believe that I am getting better…yet I know that when my ex- comes around town or has visitation (with police present)my levels will probably go wild again.My stress ALWYAS manifests itself physically in me before any mental signs. It’s just the way my body deals. So I want a diagnosis so I can move on with life and have a plan for treatment and life management.
Well I’m heading to bed.
Everyone let me know what you think about all this? What’s your opinion?

Thanks so much…Ya’ll take care!

[Ski]

#1073752

There is such a thing as transient hyperthyroidism, but a "lit up" scan would typically lead to a suspicion of Graves’. At this point, if your levels are in the normal range, just be grateful for that ~ whatever the reason. Now that you’ve connected with the doctor, you may have an easier time "squeezing in" an appointment in the event you begin to feel really crummy again.

IF what you’re dealing with is Graves’, it is an autoimmune condition, which means that stress may bring on symptoms. Stress stimulates the immune system to protect us, but unfortunately, with Graves’ our immune system partially attacks us as well, so both things happen. It is impossible to remove stress from your life, but if there is ANYTHING you can do to keep yourself from reacting so severely, it will help to minimize your symptoms. I’m not saying you don’t have a reason to "freak out," I’m just saying that if you can short circuit that instinctive extreme reaction, you will be doing yourself a favor. I’m also not saying you should "stuff" your feelings, rather than expressing them, because in MY opinion, that’s part of the behavior that probably got us here. It’s truly a "Zen master" thing, where you learn how to TRULY not be upset, or at least less upset. It is what it is, run some damage control and move on to the next step.

I hope that helps! Sorry things are so frustrating right now. Do something for yourself today. It will help. ” title=”Very Happy” />

[sarabear0508]

#1073753

You can’t get copies of your ct scans. At least not here! After the results come back it’s sent electronically to the system your doc uses and they pull up the image when needed. They won’t give you copies.

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