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Oh, Lynne, what a bum doctor! He has the empathy of a stone. I’m glad you got him at least to listen to your plight about the swelling. And, probably when the swelling goes down, you’ll feel a LOT better. I have a technique (which I haven’t had to use on this endo yet, bless her) that when they tell me that it isn’t the thyroid I ask them what it is. Don’t tell me what it isn’t, tell me what it is, and get rid of it, please. Ball back in their corner, no more passing of the moldy buck. But it sounds like you can look out for yourself, too. : ) Sending you cyberhugs. Hang in there.
Bobbi
Perhaps you can ask for a second opinion. Too many times the doctor equates Graves with common everyday thyroid. I know it’s not easy to take on your doctor, but it is your body and you need to make sure you’re getting the best advice. My doctor insisted I get a second opinion on almost everything so I would feel secure. Try it,you shouldn’t have to wait so long. I had RAI two weeks ago and am having my second blood test this week.
Well, I’m off synthroid for the moment, while new bloodwork gets done. Do I feel like a pincushion here??? YES! They did not ask for a full scan last week, and today the lab had thrown out the old blood. Oh, well. My endo is a bit spooky, because she relies on subtle indicators to guide her. If my voice sounds too low to her, she wants to check for hypo. Today, she felt my hands, and said, “Boy are you HOT!” and gave me Tapazole to take with me on my trip, “just in case”. She is abrupt, but answers questions, and calls back the day I call in, so I guess abrupt is not all that important. I have the feeling she listens. She may not agree, but she listens. So, I’m off to Hawaii tomorrow with a new prescription for beta blockers, a prescription for xanax, Tapazole, and wondering if I’m going to be able to do anything other than read in the room. Here’s hoping.
I want to thank Steve and Luci for responding to my last “desparate measures” post. You helped. And I guess I have to look upon the “irritability” quotient that Graves gives me as a bit of a blessing. I was VERY assertive today. : ) I used to be a push-over. Perhaps it’s a thing of the past??
Anyway, while I’m off the board, I wish you all the best. Take good care of yourselves.
Bobbi
Perhaps you can ask for a second opinion. Too many times the doctor equates Graves with common everyday thyroid. I know it’s not easy to take on your doctor, but it is your body and you need to make sure you’re getting the best advice. My doctor insisted I get a second opinion on almost everything so I would feel secure. Try it,you shouldn’t have to wait so long. I had RAI two weeks ago and am having my second blood test this week.
Well ….Just got back from my “every 8 weeks” visit to my Endo.
What a joke… I called 2 weeks ago because I was feeling so bad
and my legs and feet were so swollen I could hardly walk but
could not seem to get past “The Dragon Lady” in his office.
I went in there with a mission today…I needed something for the swelling
and “Why was I not on synthroid yet??”. Well I got my synthroid, finally
….I had RAI in November and we were waiting to see how things went…..Ha!
I am so tired of seeing how things are going to go I could spit!!!!
I have been depressed, tired, lethargic for 4 weeks but “Lets see how things go
“……Sorry if I sound sarcastic. but I really am!
He told me last time I was in that the swelling was not water retention and
wasn’t really connected to the Graves so I had to live with it…This time hes looked at my
Elephant feet and said “Oh, I see we have some water retention there”….
Go Figure!! He told me he didn’t want to give me a diuretic as that was not how it was done???
I said “I HAVE TO LIVE WITH THIS…NOT YOU! I CAN’T EVEN WEAR ANY OF MY SHOES!!!! He quickly wrote
me a prescription…hehehehe I guess the squeaky wheel gets the oil..
I told him I had gained 40 lbs in the last 6 months and he told me there was
no way it was from the Graves…I would only gain 10 or 15 lbs from that the rest was
from overeating because I was used to eating bigger portions while
I was Hyper….I eat even less than before but He doesn’t believe me.
I think it is time for a new Endo…One who will listen to ME!!!!!
But how to get one without a referral…..I don’t know which way to turn
I am so fed up with everything about this disease especially the Doctor!!!
Sorry for going on but I had to spout somewhere. Thanks for listening
Luv. Lynn from TOTo Lynne
Have you thought of using your GP? He has more time and it is his interest to treat all of you and not just the Graves. I only saw a specialist a couple of times. Once the RAI was done, I was sent right back to my GP who is monitoring TSH and T4 levels every two weeks.
I’m not sure we can just shop around for an endo in Canada. I think we have to be referred by our GP.Brenda
Hi, i’m going to a third endo and maybe
a fourth if i can’t get simple answers from these dopes ,
my gp understands but if you dont want to bother your gp
any walkin clinic in Ontario, well the doctors there should
beable to hook you up if there not all on strike – heheheLynn, I am from Ottawa and also was hyper with Graves disease. I was lucky that I reacted well to PTU and soon got my symptoms under control. I notice you mentioned weight gain – and I thought I was the only one!! I had lost about 25 lbs around the time I was diagnosed( weight watchers) and thought I would lose more because of being hyper. wrong!!! I have gained about 40 lbs since then and I really need to lose more than that. My doctor says it is genetic and not connected to Graves but still can’t explain why I don’t lose weight when I have loose stools at least 4 – 5 times/day. Neither is my appetite very big ( never was) The bottom line is that I really think drs. don’t like it when you don’t fit into a pattern they can explain and try to get you out of their office as quickly as possible. My advice to you – don’t put up with anyone you don’t trust, can’t talk to or feel they don’t take your interests at heart. One good thing about this, Lynn is our health care system pays for everything so we don’t go broke while the drs. dawdle while making a diagnosis.
kindest regards and good luck – BonnieBeeHi Bonnie,
I know it is very very frustrating to gain all this weight
and not be able to lose it. I have never weighed this
much in my life. I feel like such a frump!!
I am going to ask for a referral to another Endo cause I certainly
do not think mine is very concerned…
Maybe another will take the time to listen to ME… -
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