[snelsen]

#1174191

Corneal abrasions related to surgery. The part of the eyelid that touches the eye is rough, thus causing continual irritation. Of course, this is not a “common occurrence” I continue to have nothing but complications with any procedure I have, not to mention daily living, with TED.
Shirley

[Kimberly]

#1174192

Oh, no…sure hope you can get some relief soon. Please keep us posted!

[Ski]

#1174193

Hi Shirley!

Sorry I’ve been away while you’re going through all this — sounds like you’re still battling the pain, I’m so sorry to hear you’re going through this.

I’ll send healing thoughts your way, I really hope things start to resolve WELL for you!

Hugs,
Ski

[snelsen]

#1174194

Hi Ski, nice to hear from you.
Pain for 8 days, like a suture scratching my cornea. Doc said ( I saw him every day, no it can’t be that!” Went yesterday, said look again, I can’t stand eh pain. Doc says, “hmm, looks like one of the sutures on the muscles of the eyelid came apart.” Well, duh. He removed it, threw in a new suture, I reminded him to make a good knot, like he was tying his shoes! Contact over eye to protect abraded cornea-but it does not stay in the the right place, then the contact is a foreign body itself. Whee.
Are you planning to go to San Diego? Is Bobbi?
Shirley

[Carito71]

#1174195

Hello Shirley,

I’m late to your post … but I want to wish you a quick recovery. I know it has been tough so far, with the pain and all but I’m very hopeful that things will start turning around for you soon.

Please keep us posted. Stay strong. I’ll come back to see how things are going.

Smiles,
Caro

[Robboford]

#1174196

Hi Shirley,
Sorry to hear about the pain and issues you have been dealing with post surgery. Prayers and good thoughts being sent your way from Down Under. As the Warrior you have already proved to be, I am sure you will battle on and update us with your progress and hopefully a positive outcome from surgery, or at least an end to the nightly taping. I saw an Opthalmologist last week and have been officially diagnosed with TED, CT Orbit scans this week and then a 3 week wait to see the Opthalmologist again. All sounds a bit scary though, he is already talking about Radiotherapy but will have to wait for scan results, just another detaour on this Grave’s journey of mine.
Cheers, hugs and kisses
Debbie

[Ninajanet]

#1174197

Beach 45 how have you been doing after rai? I hope you are doing well:)

[PSylo]

#1174198

Robboford,
I am still trying to understand the TED. My graves disease started with issues with my eyes. My endo and opthamolgist, both say that they have seen worse and that we will have to wait and see.
Everyone seems so vague and that there really is not anything we can do.
I was just placed on meds for hyperthyroid (Sept 7th)
Any words of advise or enlightenment? Is there a possibility that my eyes will go back to normal…????

Pam

[Kimberly]

#1174200

Hello – TED typically goes through distinct phases. The period where symptoms are getting worse is referred to the “hot” phase. Once the “hot” phase is over, there is usually some improvement in symptoms…and then things eventually level out and stop changing. (This is referred to as the “cold” phase).

So it’s possible that you will see improvement, but every case is different, so it’s difficult (even for our doctors!) to predict what will happen.

Take care!

[Ski]

#1174199

PSylo wrote:

Robboford,
I am still trying to understand the TED. My graves disease started with issues with my eyes. My endo and opthamolgist, both say that they have seen worse and that we will have to wait and see.
Everyone seems so vague and that there really is not anything we can do.
I was just placed on meds for hyperthyroid (Sept 7th)
Any words of advise or enlightenment? Is there a possibility that my eyes will go back to normal…????

Pam

Hi Pam,

Just wanted to add a little bit of info for you — the truth is that there isn’t much your doctors can do, while you wait through the “hot” phase as Kimberly described. For patients who have severe symptoms that may threaten their eyesight (such high amounts of swelling that the optic nerve could be compressed), steroids and/or directed radiation can be used, but the risks associated with those are high, so that’s typically reserved for the very worst cases. Any changes in our eyes is traumatic, there’s so much more associated with our eyes than just seeing — it’s how people see us, how we feel about ourselves — so try to minimize the changes with “camouflage,” using sunglasses (actually, that’s good protection for your eyes as well), hats, and SMILES (we always look better when we’re smiling!).

There is a distinct possibility that your eyes will return to normal, it happens to many. Happened to me. I hope that helps!

[Author]

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