[WWWI2]

#1060348

Last summer I was taken off of meth and my levels were normal. However in September, 3 months after I was taken off Meth my results showed my TSH @ .7 and I’ve been symptomatic since then, although not nearly as much as I am now. So it made me curious what is typically done for people who have low but normal TSH but are symptomatic?

[LaurelM]

#1182099

Hi,

Did they only do a TSH? Did they also do the T4 and T3? Do you have the results from you last testing to compare to?

It would be interesting to compare your current labs to your last set to see if the levels are changing. The TSH is a running average over the last few weeks so it may not accurately show what your real levels are today.

I know that i can be symptomatic when my levels are moving, even if they are moving in the right direction or are within the normal range. Also remember, that your normal will be in a fairly narrow spot within the wide normal range.

I hope today is better.

Laurel

[WWWI2]

#1182100

I’m waiting for the rest of the numbers but my TSH is now .5 and I feel horrible.

[gatorgirly]

#1182101

Not everyone feels good simply because they are within their lab’s normal range. Personally, I feel much better when my TSH is on the low end of normal – around 1.0. When it was a 2.0 or a 3.0 (my lab’s normal is 0.4-4.0), I felt hypo and awful. So we upped my dose and my TSH has been steady at a pleasant 1.0 for more than a year now.

What symptoms are you having? 0.5 is on the low end so I assume you’re feeling hyper? I would see if maybe your endo thinks lowering your dose or even alternating doses would help bump up your TSH just enough to make you feel euthyroid. For a while, I alternated between 50 and 75mcg every other day. Now I am actually on 88mcg.

[WWWI2]

#1182102

Gatorgirly

That’s the tricky part. I haven’t been on meds since last summer. I got to see my doctor yesterday and she has agreed to let me take 2.5 mg meth every other day. She sayid my T4 and T3 are fine and so I’m not coming out of remission. So I asked her why my TSH is at .53 and she said some people just have a low tsh. So i just don’t know. What I do know is I’m hugely grateful she’s letting me try this. Otherwise I would commit myself…somewhere because yes I am WAY hyper and miserable.

When my TSH went from 1.2 to .7 and she said it was normal, I got myself some seroquel so I could sleep. I hate taking seroquel but it was the only thing that gave me relief. And over the last 3 or so weeks even the seroquel wasn’t working and it turns out my TSH was .53.

Anyway, we’ll see how this goes, but I hope beyond hope that this will work.

Thanks for responding

[WWWI2]

#1182103

Gatorgirly

That’s the tricky part. I haven’t been on meds since last summer. I got to see my doctor yesterday and she has agreed to let me take 2.5 mg meth every other day. She sayid my T4 and T3 are fine and so I’m not coming out of remission. So I asked her why my TSH is at .53 and she said some people just have a low tsh. So i just don’t know. What I do know is I’m hugely grateful she’s letting me try this. Otherwise I would commit myself…somewhere because yes I am WAY hyper and miserable.

When my TSH went from 1.2 to .7 and she said it was normal, I got myself some seroquel so I could sleep. I hate taking seroquel but it was the only thing that gave me relief. And over the last 3 or so weeks even the seroquel wasn’t working and it turns out my TSH was .53.

Anyway, we’ll see how this goes, but I hope beyond hope that this will work.

Thanks for responding

[gatorgirly]

#1182104

Well that explains why you’ve been feeling hyper. You don’t need Seroquel for hyper symptoms – namely insomnia – you need ATDs (unless you need the Seroquel for other reasons).

I don’t buy the whole “some people don’t have a low TSH.” You aren’t feeling right, so it sounds like you need to be on at least a small dose of ATDs. I could never achieve remission so I went the RAI route, therefore I can’t comment on whether or not you’re coming out of remission but it seems to be if you need any dose of ATDs to feel well, something isn’t right. I hope the methimazole starts working and you feel better soon.

[WWWI2]

#1182105

Thanks GG

That’s the one question I still don’t have a good answer for is why the TSH is falling and I’m symptomatic. I have suggested the antibodies tests but she wants to go by the Ft4 and T3. I don’t have the energy to fight of find yet another doctor. So right now I’m living in the land of denial and hoping that the every other day 2.5 mg will make a difference and just hope for, long term, my tsh decides to live between 1 and 2. One can hope…

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