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  • ely2009
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    Post count: 199

    Hi. I know what you mean about trying to watch out for the "good signs." I sometimes fall into – oh, poor me, I feel so bad today. then my husband will remind me how bad I REALLY felt for weeks at a time a few months ago. It’s all about perspective. <img decoding=” title=”Smile” />

    I, too, have tremors. At the beginning they were really bad and constant. I’m on a low dose of methimazole and my TSH has just creeped into the "normal" zone. Some of my symptoms are lessening, but the hand tremors are still around – not constant, but some days are still pretty bad. I think that I’ve read this is normal because the excess hormone can remain in your body for several weeks. i can’t wait for them to be gone for good!

    Hope you keep feeling better.

    Emily

    ewmb
    Participant
    Post count: 484

    Just wondering for those who have recovered from any type of treatment but especially RAI……. How long did it take for the tremors, if you had them, to go away? And when they finally went away was that a real sign that you felt much better and that your tsh levels had settled?

    Just trying to get a gage on "good signs" during my recovery. Had RAI about 3 and half weeks ago. Went to endo but haven’t gotten blood work back yet and he said that it might be too early to show any change anyway.

    ewmb

    Ski
    Participant
    Post count: 1569

    It probably is too early, at 3 or 4 weeks, to see much difference, though you may start to notice small improvements. I was on a low dose of beta blocker to fight the tremors, so I really can’t say how long it was before mine went away.

    Remember, this is a long road you’ve started on ~ even when your levels reach the normal range, they’ll be headed to the hypo range (most RAI doses intend destruction), so the point at which your levels will be "settled" is rather far ahead of you. Once you’ve hit the normal range, you’ll notice less and less of the hyper symptoms. Then you need to start watching for hypo symptoms so that you get started on replacement hormone as soon as possible. It takes a while for the replacement hormone to build up in your system enough to relieve hypo symptoms, and your levels may be dropping even further all the time, so the sooner you start taking the replacement, the less time you’ll end up being hypo and the sooner you’ll feel well.

    We’re here for you! Remember too ~ from now on, you’re closer to normal every minute, and you’re being carefully monitored. It won’t get out of control like it was, not ever again.

    ewmb
    Participant
    Post count: 484

    Emily and Ski,
    Thanks for the encouragement and information. The fear of things getting out of control again is what causes a lot of anxiety but I do see progress every day. My husband is good at reminding me too. Wonder how many of us Emilys there are who have been hyper. Used to be that I didn’t know many other Emilys.

    One day at a time or as I say on occasion One Hour at a Time.

    ewmb

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