Viewing 8 posts - 16 through 23 (of 23 total)
  • Author
    Posts
  • Ski
    Participant
    Post count: 1569

    I’ve known people who’ve had those puffy tissues around the eyes from being hypo, so make sure your levels are good. That may help too.

    Maria
    Participant
    Post count: 19

    I had the eye thing both hyper and hypo. Nothing worked, not even prednisone. Eventually I just had to have the eye surgeries.

    DianneW
    Participant
    Post count: 292

    My eye puffiness was caused by fat from behind the eye being pushed forward into the skin around the eyes, which then attracted and held fluid. That happens for many TED patients. For me (as for Maria) it had to be removed surgically.

    6819
    Participant
    Post count: 1

    Hello, I’m new to the website and sorry but for the life of me I can’t figure out how to post a new question. However, this question about eye swelling is similar to mine. I was diagnosed in May 2008 with Graves and GO. Since then my thryoid levels have been a yoyo. When put on methimazole I go way "hypo" (last week my TSH was 92.44 with .3 – 5 being normal) T3 and T4 out of range as well. Five weeks ago before going on Methimazole my TSH was .06 and I was having problems with rapid heart rate and high blood pressure. This same thing happened back in Sept. The problem is whenever my TSH goes above normal range my eyes swell around the outside. When I go off the swelling goes down some. I also have ongoing problems with double vision. Finally the question, my endocrinologist wants me to take both methimazole and levothyroxin this time to try to get my levels stable. Has anyone taken this route of treatment and how has it affected your eyes? Thanks and sorry this is a question to a reply.

    Liz
    Participant
    Post count: 4

    Dianne, when you say the only way to get rid of your puffy eyes was to have surgery, what kind of surgery are you talking about? Opthamologist or Plastic Surgeon?

    DianneW
    Participant
    Post count: 292

    This is for Liz: The surgery I’m talking about to get rid of the fatty swelling around my eyes was a blepheroplasty, and was done by a ophthalmic plastic surgeon. He did it in conjunction with lid retraction surgery (to reposition my eyelids). The insurance didn’t pay for the blepheroplasty even though the fat deposits were caused by Graves’ Disease, considering this a cosmetic surgery.

    DianneW
    Participant
    Post count: 292

    This is in reply to 6819: When the doctor treats you with an antithyroid drug and also a thyroid replacement hormone to keep you from becoming hypothyroid, this treatment is sometimes referred to as "block and replace" therapy. It can be useful for patients who are difficult to stabilize. As for the well-being of your eyes, in theory they should do better once your thyroid levels are normal, though there is no guarantee of this. Being hypothyroid is the worst for the eyes. Still, keep in mind that the eye and thyroid aspects of this disease, though related, are separate conditions and the eye disease (TED) will do what it’s going to do regardless. It’s rare, but still possible, for someone who has had the thyroid disease treated and stabilized to find TED rare its ugly head out of the blue 20 years down the road.

    To post a new topic go to the page with the list of post topics. Right above the entire list, on the upper left-hand corner below NGDF.org is a button in red that says, "NEW TOPIC". That’s all you do.

    erobinson, you asked about morning sensitivity. Have you tried night-time ointments? I’m talking about the kind made with a combination of petroleum jelly and mineral oil. The kind that works for me best is Refresh P.M. Put it in the very last thing, as it’s difficult to see clearly once it’s in. Use a 1/4 inch strip inside each lower lid. It made a dramatic difference for me. I hope it helps you.

    erobinson219
    Participant
    Post count: 40

    I have not yet tried night-time ointments. thanks for the tip!

Viewing 8 posts - 16 through 23 (of 23 total)
  • You must be logged in to reply to this topic.