[GravesRookie]

#1060347

I have my RAI therapy appointment at 10 this morning….8:07 now. I can honestly tell you I am a bit nervous, but I have faith in my Doctor and I want to get going toward getting this taken care of.
This is the string I will use to keep my experiences posted. Hopefully this will help someone else through this should the time come.

[barbra]

#1182073

Hi,

I don’t know where you are but according to my clock your RAI should be over. I’m hoping everything went well and you’re OK.
I had mine done in July 2013. The therapy itself was easy after getting through the before and after rituals.
About 6 weeks ago the endo switched me from Levothyroxine to Synthroid and aside from some minor complaints, all the big ones seem to be resolved so far. I am feeling the best I have in a long time.
I’m just trying to assure you that it’s going to work and you’ll get better.
If you have questions or just want to vent we’re all here to listen.

Hugs.
Barbra.

[GravesRookie]

#1182074

Thanks Barbra

I just got home a bit ago and I am settling in. My dose apparently was pretty small, 15mci. I don’t have to stay in isolation as long as originally thought….only really 3 days. It took longer than scheduled because I had an arm load of questions for the tech and the Dr. The tech was extremly nice and helpful, she put my mind at ease and really helped me.
I am glad that part is done and now we can move on to the blood testing and medication process.
The tech told me that I probably don’t even remember what normal feels like and that I hopefully will get there soon.

so this begins day one

[buriedsunshine]

#1182075

Hi GravesRookie,

Looking forward to reading about your journey.

I had RAI done on December 12th. It’s been a bit hectic: some days I felt great while other days I needed to stay in bed. I’m still not on replacement hormones, but my heart rate is slowly decreasing which is something to watch out for if you’re on atenolol or any beta blocker.

Hopefully you can go back to eating salt, eggs, dairy, etc. soon! Best of luck to you!

[GravesRookie]

#1182077

Woke up this morning feeling not bad, but not good either. It feels kind of like having a cold. I slept fairly well last night, no nausea to speak of. I can say this is the most bored I have been in a long time, not being able to do a whole lot.

and so begins day two

[gatorgirly]

#1182076

I too had a small dose – 10 mCi. I was supposed to be in isolation for 72 hours but I had it done at noon on a Friday and was told I could go back to work on Monday but not attend our staff meeting around a cramped conference table. The guy I was dating at the time was either a saint or an idiot, and refused to leave my side the whole weekend. I felt like I had strep for a few days but kept sucking on hard candy and drinking a TON of water, and felt better in no time.

I slowly began to get back to feeling like I did before Graves’, but I never felt “bad.” Everyone’s experience is different but if you had a small dose, that probably means your thyroid uptake scan came back with a really high percentage like mine, and hopefully your recovery will be uneventful like mine was, too!

[GravesRookie]

#1182078

gatorgirly,

My uptake was 50% so I guess we may have had similar symptoms in that regard. I have been feeling better as the day progresses and look forward to feeling better more regularly.

I am just kinda bored is all. My isolation is only 72 hrs as well, so Thursday I am going ‘somewhere’ 😆

I have some hard candies called ‘Lemon heads’ and oh my God they are sour!

Day two continues

[buriedsunshine]

#1182079

I was told to eat lemon candy too! For the nausea I did have some ginger candies I bought at an Asian supermarket.

My uptake was 70% and my dose was 13mci. A little bit higher.

Keep us updated!

[GravesRookie]

#1182080

woke up this morning feeling pretty good, tomorrow is the last day of isolation! I am taking an extra day just to be safe. I have had no nausea what so ever

I go in next Wednesday to do bloodwork. Maybe we can start moving forward and get things headed in the right direction soon.

it just gets better every day

and so begins day three

[GravesRookie]

#1182081

I haven’t posted anything lately simply due to the fact there is really nothing to say. I feel pretty darn good.
Went to the Dr. yesterday for bloodwork; he thought it may be a little soon to be testing, but this is my call, so we took blood. I should have the results back tomorrow, maybe Friday.

[Kimberly]

#1182082

GravesRookie wrote:

I haven’t posted anything lately simply due to the fact there is really nothing to say. I feel pretty darn good.

Great news! That’s always a message worth sharing!

[GravesRookie]

#1182083

Got my blood test results back yesterday, so far no change. So we wait. Still feel really good with no complaints

Happy Valetines Day and have a great weekend!

[sunshineH20]

#1182084

Hi Rookie Graves, I too am a rookie, I was diagnosed with Greaves only a week and a half ago. After 9 years. I will see a specialist on Wednesday. I was just wondering how long you waited till you got your RAI treatment after being diagnosed. I have been in bed for 4 weeks now cause I lost so much muscle and I get only a couple hours a sleep a day. I have been off work for 6 months, no money coming in and I have to get back out there and live.

[Kimberly]

#1182085

@GravesRookie – Thanks for the update!

@sunshineH20 – Hello and welcome! Wow, so sorry to hear that it took you that long to get a correct diagnosis! The “Treatment Options” thread has a couple of nice links that will help you get familiar with your options before you see the specialist.

[buriedsunshine]

#1182086

Hi SunshineH20, I’m not GravesRookie but I was recently diagnosed in August. I can only speak about my personal experience but here it is:

Diagnosed August. Took anti-thyroid (methimazole) in September. I was allergic so I started taking PTU. I felt so crummy all the time so from October-December I gained 15 pounds (I’m pretty short so the weight was noticeable). I had mild depression. I slept constantly. I lost all of my muscle and was pretty weak. I missed running and exercising. By mid-December (four months after my diagnosis) I decided on RAI. It’s only been about two months since RAI but I can say I’m really glad I chose RAI. Thinking back on it, September-December was really foggy for me. I actually don’t remember that much from it because every day bled into the other. I feel much better now — like I am less of a zombie. I started on my replacement hormones a few days ago and I am slowly starting to feel almost normal. It’s only been a few days, but I can honestly say I feel better. I kept a diary to track my thoughts and the last few weeks have been pretty positive.

Hope this helped.

[Author]

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