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  • tbrabitz
    Participant
    Post count: 2

    ok had a long message but my cat deleted it all.

    To sum up.

    Graves dx’d in Jan 1996. had RAI that Jan. Put on meds 7 months later.

    Over the years have gone from 130lbs to 270 lbs.

    Have cysts on my ovaries. Have bulging dics in my lower back. Falling out hair. Dry skin causing me to itch all the time. Athritis in my back and shoulders (depending on which doc you ask). Always thirsty. Depressed. tired all the time. Sleep is horrible.

    Used to exercise all the time but no difference. I eat like a bird. I do eat healthy. (getting back into the pool to try to firm up muscles)

    Take my meds every day. Was having adjustments every 6 months on meds until 4 years ago.

    Lots of tests – says am healthy as a horse except the few exceptions.

    Contradicting responses to losing weight. Told it is all my fault and not the thyroid. or told when I find a way to lose weight I can market it and be a billionaire.

    I want to lose weight! I NEED to lose weight! Lypo is out of the question. HELP!:(

    Next thyroid test is on the 16th. Endo’s at Veterans med centers will not see me and say it is under control.

    Kimberly
    Keymaster
    Post count: 4294

    Hello – You will hear many different opinions on weight issues from patients and from the medical community, but my personal experience is that weight issues became a significant struggle for me after I was diagnosed and treated. (I have been taking methimazole for 4 1/2 years).

    During a panel discussion at the Foundation’s 2009 conference in Charlotte, one of the doctors on the panel indicated that it’s possible there might be a “resetting” of one’s metabolism following thyroid issues.

    This conference also featured an interesting presentation from a nutritionist. She utilizes Metabolic Testing to check the Resting Metabolic Rate (RMR) of her clients. She provided one example of an actual client who had been treated with RAI and stabilized on a dose of thyroid hormone replacement. There is a “standard” calculation based on weight, height, and activity level that many people use to determine RMR. However, the nutritionist found that this woman’s RMR was actually about 150 calories a day *less* than the standard. The nutritionist’s comment for Graves’ patients trying to lose weight was, “you have to track EVERY calorie” – because our margin for error is so thin.

    Also, here are a few other suggestions the nutritionist had regarding weight loss:

    * Include breakfast daily within 2 hours of waking up.
    * Don’t go longer than 5 hours in between meals
    * Select “high volume” and “high fiber” foods such as fruits, veggies, and whole grains
    * Limit servings of healthy fats to 1 per day
    * Prioritize at LEAST 7 hours of sleep a night
    * Once a doctor’s clearance has been received to resume activity, do 150 minutes per week of physical activity, plus strength training 2 times per week.

    There really aren’t any easy answers. I know from personal experience as someone who *used* to lead meetings for Weight Watchers before my diagnosis, and finally had to quit because my own weight was creeping back up.

    My personal take is that it’s important to keep fighting the good fight in terms of being active, eating cleanly, tracking our food intake, etc.. Giving up is not the answer, as that will certainly have an even more detrimental effect. But honestly, for some patients (like me), the degree of difficulty just seems to go up when it comes to weight loss.

    Take care!

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