[DianneW]

#1073408

The only time I had thyroid pain was after my RAI, when the cells were damaged and becoming even more hyperthyroid. Pain and swelling are usually a sign of inflammation, and when that’s occurring in your thyroid that could signal even MORE output of thyroid hormone. So if you haven’t already put in a call to your doctor to see if there is something that should be done, I hope you will do that. Specifically, I am concerned about a possible thyroid storm. It can come on suddenly and be very dangerous, so do give him a call!

[hyperm]

#1019685

Hello me again.

Today I have woken up with a horrible pain at my thyroid which was going up into my jaw – my first instinct being part of a crash team was a horrible thought that it was coming from my heart but I feel its more around the area where my thyroid is. I do have a good size of swelling and I remember last time when i had a swelling that if i leaned over etc I thought my head and neck were going to explode however my endo said that is just down to the swelling. However, this pain is something I haven’t had before and was just wondering if anyone else had the same?

Also the last time it was out of control I could eat for Britain and was loosing weight quickly. This time the weight is falling off (as a woman I can’t deny that this is happy side effect ) however, I can hardly eat this time – have pains in my stomach and could basically have a slice of toast and then that could be me for the day – going on for around 3 months now. My hubby is Japanese and food is a huge issue with him and he is really concerned but I just can’t eat

Thanks again for listening to my moans

m x

[Maria]

#1073409

Thankfully I never experienced thyroid pain..

[Buttamama28]

#1073410

I unfortunately know what you are talking about. I wake up sometimes with this throbbing pain in my neck. It is usually pretty sensitive. Like just touching the area makes my neck, head, and chest hurt.

So, know it’s a pain in my neck too… Sorry, it really isn’t funny; but what can you do?!

[mtbikrchick]

#1073411

I have to agree with Dianne, call your doc and see if there is anything you can do about the pain. I had radioactive iodine on March 1, 1994. Over the 15 years since, I occasionally have experienced a throbbing/achy pain from my thyroid off and on with no obvious pattern. I have never been able to explain this. It usually lasts two or three days then disappears. Although, about 4 or 5 years ago, the pain remained for several weeks. Palpating the area made me totally nauseated. I finally went to my doctor and inquired about possible thyroiditis. My doctor’s exam of the area made me *really* want to throw up. Doc was at a loss to explain it. He did some research and decided it wasn’t thyroiditis, but he never did have a real explanation. After about a month, it went away. Also, since doing RAI, I have real difficulty with anything touching my neck. While it doesn’t hurt, the area just seems to be super sensitive to just about everything. Again, there has never been a real explanation for this sensation either.

I personally believe that the RAI did not kill all of my thyroid tissue and I still have Graves antibodies attacking whatever remaining thyroid tissue exists. So, the occasional pain or ache is either from the antibody attack or from the remaining tissue continuing to die off. But, that is just my theory. I have nothing that backs it up.

Good luck!
Sheila

[Author]

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