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  • adenure
    Participant
    Post count: 491

    I am reposting my last post on my “Now What?” thread in case it isn’t seen because I’m hoping someone has some insight on this. Yes, I will talk with my doctor Monday.

    The bitter sweet part of all this is that (in the 7 days), both my TSH & Free T4 have returned to normal- TSH is 1.46 (it was .01 with the normal range being .35- 4.00). My Free T4 is .9 (is was 1.92- normal range .81- 1.54). So, my next question is, how long will these numbers last off the methimazole? What’s my window for surgery? Does anyone know? Yes, I have been emailing my doctor over the weekend to get my thoughts out to him- so I plan on talking with him come Monday, but waiting is hard.

    Alexis

    Yes, I will do whatever I have to do to stay normal, even if I have to wean my baby. My 1st son was bottle fed after a month of nursing. So, I will survive and so will he, this I know. It’s just hard. But, one day at a time and trying to stay positive.

    Kimberly
    Keymaster
    Post count: 4294

    Hi Alexis – Wow, I’m so sorry you are having to deal with all of this. :( No one here can predict how long it will take your levels to go hypER again once you discontinue the ATDs. We had one doctor at our last conference mention that he had never seen two cases of Graves’ that were exactly alike — even among identical twins! Your doctor will hopefully be able to provide at least an estimate. Please keep us posted on what you find out.

    Just a side note, but I can’t recall if your doctor did a baseline liver function test prior to starting the methimazole. Being in a hyper state itself can affect this testing, so docs generally watch for a change over time. (Although if the levels are over 5x the upper limit to start with, ATDs are generally not recommended as a treatment option).

    Take care!

    adenure
    Participant
    Post count: 491

    Thanks Kimberly,

    My baseline was pretty normal. ALT was 42 & AST was 26. Now they’re 323 & 233.

    Alexis

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