[WWWI2]

#1059663

August 2012 – Graves’ diagnosis –
TSH – non-existent,
FT3 and FT4 way high. Given 20 mg Methimizol

October –
TSH still non-existent,
FT3 (Dr. forgot to test),
FT4 normal – Doc drops me to 10 mg Methimazol

November
TSH Normal range,
FT3 Way high,
FT4 Way high- go back to 15 mg Methimazol. Get new doctor

December
TSH – Normal,
FT3 Normal,
FT4 Low – New doctor adds Levothyroxine @ .50 and increases to .75

January 25, 2012
TSH – High (2x normal range),
FT3 Normal Range,
FT4 Normal range. Doctor lowers Methimazol to 10 mg and ups Levothyroxine to 1.0 mg

I don’t feel good. Am I whining or is it legit? And aren’t the number supposed to all go up or down at the same time?

Thanks.

WWWI2

[Kimberly]

#1176610

Hello – First of all, *you* know your body…and if you say you don’t feel well, it’s legit!

But absolutely having such significant swings over the last few months would leave *anyone* not feeling well!

The T3/T4 measurements are “point in time” benchmarks that will show where you were at the moment that your labs were done. The TSH on the other hand, is a “running average” of where our levels are over time. So although T3/T4 and TSH will generally move in opposite directions, the correlation won’t always be 100%.

It’s certainly worth asking your doc about next steps and what it’s going to take to finally get you stabilized!

[catstuart7]

#1176611

One thing that plays into this is that results shouldn’t be thought of as just “normal”. One can have a normal FT4 meaning it is in the range but near the bottom of the range and feel bad because they are nearing hypo territory or near the top of the range and feel bad because they are entering hyper territory. And where people feel best within the normal range varies individually also. You might find it useful to get copies of all your labs and ask your endo the details of what “normal” means for your 1/25 labs.

[Naisly]

#1176612

My question to your doctor would be – If I was in ‘normal’ range, why such a high dose of MMI? 10mg seems pretty high for normal. Ask if he is dosing using TSH or TF4. Your TSH seems to be moving fine and the TF4/TF3 will follow suit as Kimberly said. Also, yes, do what catstuart7 had mentioned and get copies of your labs.

For example, my labs are in range
TSH 3.9 (0.38-5.5)
TF4 10.8 (10.5-20.00)
TF3 5.4 (3.5-6.5)

Yet I still feel very hypo…

~Naisly

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