[hyperm]

#1070050

WOOOOOOO and indeed HOOOOOOOOO!!

At last things are starting to go right!

[knitlit]

#1070051

Great News Hopeful! so glad that things are going better.

[LynneB54]

#1070052

Hi Hopeful,

Glad the RAI is working for you!! Feeling better is such a blessing.

I need some help though; I can’t find a way to start a new thread so I’m piggybacking on this one. Sorry! I’ve tried twice and it just doesn’t go through. So if my posts have some how gone through and I can’t find them – sorry for the repeat. I just couldn’t find the ‘send’ button like it is here.

I had RAI in February. My TSH stayed at .004 through May. My T4 levels went down so I was feeling much better. But last week I truly crashed and feel really, really awful now. My TSH has spiked to 124; I take it that’s pretty high. The doctor called the day he got the results (last Wednesday) and I started on Synthroid 112 mg. that day. I go in tomorrow for what will probably be weekly visits for a bit until we can get this stabilized. Which leads me to the reason for the post: when might I reasonably expect to feel better?? Any thoughts on that? I have a whole host of symptoms that are well known to most of you, and would just like to know that there is an end in sight. Also – I have ‘brain mud’ and can’t think of a reasonable question to ask the doctor tomorrow to save my life. Any suggestions??

Not sure at this point if being hyper or hypo is worse….

Thanks for the help,
Lynne

[Hopeful23]

#1070053

Wow, that is hight and crazy thats how it ended up working. Its so weird how many people react so differently to the symptoms, disease and treatments. I really don’t know what to say I have not experienced that level of treatment yet or numbers. I know what you mean by mudbrain. lol.

I think you should just def write down symptoms and ask how to deal with them what to watch out for now that your taking synthroid. How long will you be affected by the newer levels. I hear synthroid takes 21 days to do what its supposed to however it goes back to well will it be that way for you. Just talk to your endo. write down answers to your questions so you can reassure yourself and read back on them if you start feeling confused or is this the way i should be feeling etc. Have numbers to contact your endo encase of emergency and make sure you know whats an emergency and what isn’t that should help elevate anxiety or uncertainty. GOOD LUCK AT UR APPT. Hope you start to feel better soon.

To post a new thread outside of a response go to top of page when your in the forum and it will say NEW TOPIC hit that and enter subject and body but how you responded to this forum was correct ” title=”Smile” /> If you didn’t know already hahahha

Love
Hopeful
Krystal

[missgooty]

#1070054

that is great news about your RAI. from what i understand, the rai is the best option for me. the meds may not work, and surgery can be tricky. i’m scared about radiation though. i hate medicine. like a said in another post, i’m not sure radiation is the way for me since i HATE taking any meds.

your posts have so much stuff in them i don’t even understand, like your tsh level, etc. will a good endo actually explain all this to me?

good luck and look forward to your updates that i hope continue to include good news.

[vintagegreen]

#1070055

I love reading how everyone is doing. Please keep us updated. People on this forum share so many interesting, hopeful stories, and I’m not afraid to actually read an entire thread before closing my computer. I love reading where others have been because I’m there now. I can’t wait to be on the "other side" too.

Still deciding~
April

[Hopeful23]

#1070056

April,
I hope you decide what you FEEL is right for you. Write everything down. Reseach and ask questions. For me, I wanted to NEVER deal with HYPER again. SO RAI IS THE WAY FOR ME. I have sooo many friends/family members that are hypo and have a great life and are OKAY with their disease. So I didn’t mind trading mine for theirs. I really didn’t have a choice but the route with RAI was def a good choice on my behalf. ITS NOT SCARY I PROMISE…. GOOD LUCK IN YOUR DECISION ” title=”Smile” />

[susandemarco]

#1070057

Dear Hopeful.

You mentioned that you have taken RAI and there are other members in your family that are hypothyroid. I am trying to find out about
weight gain with this disease. I am currently taking PTU, and doing very well on it, however it is always in the back of my mind about
the side effect to the liver. My endo suggested the RAI, but has not pushed it. So as of now I am taking 50 milligrams of the PTU.

I was diagnosed with GD twenty years ago and always went on the PTU but now my remission time is getting shorter and shorter. I feel that
sooner or later I am going to have to make the decision to have the RAI.

To be honest the reason I am skepticle about taking it is because I feel that once I go HYpo, I will not have control of my weight.

If you have any input on this please write back.

Thanks,
Susan

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