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  • Saint0317
    Participant
    Post count: 1

    I just wanted to send a thanks to everyone that has posted on here. I have been just diagnosed with Graves disease a few days ago. I spent some time in the ICU before being diagnosed with GD. I was released from the hospital a few days ago with no information about the disease. I was just given a bunch of direction on what not to do and follow up appointments.. I will be completely honest, I am extremely freak out about it. Before all of this I was a healthy 28 girl who was very active. Tonight was the first night of me sitting on the bench at my softball game feeling completely hopeless. I am still feeling fatigue with no energy and my heart is still beating a fast rate. How long does it normally take before you get your energy back after taking the Meds?

    Thanks again to everyone who has posted. It has really helped me understand the disease and what to expected in the future.

    catsmum
    Participant
    Post count: 73

    Hi Saint0317,

    Sorry to hear you’ve had a tough time but rest assured things will improve. A very wise person on this site told me recently that the mantra for Graves sufferers is ‘patience’. I’m recently new to the site as my 17 year old daughter was recently diagnosed, & like you is extremely fatigued & frustrated that she can’t do things she used to at the minute. It takes a while for levels to get sorted out & your body to adjust so hang in there.
    You say your heart is still racing? Has your doctor prescribed meds to slow it down? We live in the UK & Cat was given beta blockers when she was hyper to slow things down until her thyroid levels went down (she takes carbimazole for that). It only took a couple of days for the palpatations & heart racing to stop with the beta blockers. If you are still experiencing a fast heart rate maybe ring your doctor for advice.
    In the mean time, enjoy watching the softball (as I’m English I’m not really sure what softball is! Is it a form of baseball? Sorry for being so dumb <img decoding=” title=”Confused” /> )
    Take care of yourself & listen to your body. If it’s tired, rest!
    Keep asking questions, that’s how you get to understand this condition.
    Love
    W x

    ely2009
    Participant
    Post count: 199

    It’s hard for us to sit and watch life go by when we are used to being in the middle of it all. I too, as I think many of us, was very active before GD hit. I was dx in Feb and spent the winter watching my kids sled and play in the snow, instead of doing it with them. It IS depressing and it made me feel so guilty. I’ve been in meds for 5 weeks and am improving – although not as fast as I would like. This morning I actually enjoyed our trip to the playground. I was able to roll down the hill with my little ones and chase them around. (Of course now I’m VERY tired). It’s not perfect yet, but better than it was. GD definitley teaches you how to appreciate little things in life again.

    Good luck and be easy on yourself.

    Emily

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