[Marpo]

#1068329

I saw your post and had to answer right away. I felt like you awhile back. I know that lost helpless feeling. I know how it feels to worry about never seeing right again. You are not alone, yet is is a very lonely place to be. Nobody except those who have been there can know how you are feeling right now.

Yes, you can see normal again. Yes, your eyes can look normal again. Yes, the watery itchy eyes can get better. Yes, you can go out in public again with out being embarrassed about your eyes.

Those of us with TED, like Graves’ Disease can have different degrees of TED. Some will have eyes that will go back to normal after they run the course. Others like me, need to have a few eye surgeries to get the eyes back. I wish I knew back when it started what to expect. When I had double vision, I tried to hide it from everyone by closing one eye. Like they didn’t notice. After decompression surgery , no more double vision. By then my eyes had bulged out so much, I needed other surgery to get rid of the extra skin from the bulging. Some do not need much eye surgery, some need more then a few. It could take a year or more. I just want you to know that there are some of us here on NGDF that will tell you we have our eyes back. Check out the TED support group website http://thyroideyedisease.weebly.com/ Ajay has a very good sight with a lot of information. Dianne also has a very good sight about TED. http://home.rmci.net/deecee/

I truly hope this helps you feel better. Have faith, it can get better. Take very good care of your eyes. Rest them, keep them lubricated, use cool damp cloths to sooth them. There are other things you can do to make them feel better. Nancy can tell you a lot about that too. Take care.

[lakeview]

#1018990

Hi everyone
I feel like a broken record… but does this get better.
I am waiting to go into remission with my eyes… then it looks like I will have surgery – strabismus… since my right eye looks down..
I am wondering will I see right again?

I am wondering how many surgeries and years it takes.. what are people’s experiences
Sometimes I dream that I am normal again… I can see and I look like me… it is so hard to believe that last November I was normal and now here I am…
I feel that my entire life is on hold.
lakeview

[elf]

#1068330

Yes you will! Modern eye surgeons do wonders. It’s just a drawn out process, mostly of waiting, and yes it seems as if your life is on hold. It shouldn’t be, really. First, waiting for TED remission. Then, waiting for each surgery to heal, and in the process seeing if any other surgery is needed.

I just did one OD on one eye and it seems to me that the wait is taking forever. But it’s been 2 months only. Then OD on the other eye, then wait, then the lid surgery. Not only they will make you see well, but look well, too.

[Author]

Posts