When you said you had had your blood tested, and that your levels were "normal", I suspect you were talking about your thyroid levels. If that is correct, then what you need to know is that thyroid levels have absolutely nothing to do with whether or not our eye muscles are under antibody attack. They are two very separate issues. TED is a separate autoimmune problem closely associated with the autoimmune that caused our thyroids to go wonky. But the treatments for the thyroid disease do not treat the eyes. And your endocrinologist will probably be very little help to you on this issue. Ophthamologists are the doctors needed to treat the eye disease.
In addition, radiation to the eye muscles is a temporary fix — as you have seen. It can help for a while, but if the eye muscles are still under antibody attack, the symptoms can return. There is a "hot" phase to the eye disease, during which there is progressive worsening of the symptoms, and this phase typically lasts 18 months to 3 years. Then there is a period of time when the symptoms start to improve, followed by a long, perhaps permanent period when the eye condition has stabilized. This last phase is called the "cold" phase. ONce the cold phase has been established, our eye doctors can intervene surgically to correct issues caused by the TED. They are reluctant to use surgery (typically) until this phase, because there is a chance that a surgery done during the hot phase of the disease will prove to be too much once the cold phase establishes itself. (Remember, our symptoms typically abate once the hot phase stops.) The only time I’ve heard of surgery being used during the hot phase is when the optic nerve is in direct peril due to the swelling muscles. Typically our doctors use steroids and radiation during the hot phase to try to improve things.
I have no information about the safety of multiple eye orbit radiations, but perhaps some other faciliator here is more knowledgable about that than I am. And I have no answers for the dental question, either.
