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  • Sue_Conard
    Participant
    Post count: 153

    I’ve had TED for 22 mos. now. Just when I thought I was in a COLD PHASE and my vision was settling out, the past few days I’ve had a lot of PAIN in the temple area of my head. Has anyone had this before and if so, can they explain to me why? I haven’t had pain, like this, in about 6 mos. and today it’s been terrible. Weird, b/c I felt like my vision was turning for the better and then this symptom decided to rear it’s ugly head. Any explanation to what might be going on would be appreciated!!

    Bobbi
    Participant
    Post count: 1324

    I don’t know what it might be if the pain is coming from the TED. Shirley, or someone else here who has had a worse time with that disease than I had might be able to enlighten you. My comment is that not every health issue that we experience has to do with the Graves/TED. The only way to truly know what is going on is to go to your doctor, and ask. I developed blinding (transient) pain in my temple area a few years ago, and it turned out that I clench my teeth while sleeping. I was fitted out with a bite guard, and it alleviated the problem. So if it continues at all, see your doctor to find out what IS going on.

    snelsen
    Participant
    Post count: 1909

    Hi Sue, I have rare headaches, probably less than one a year, and not severe. i have not heard of or read about, this symptom being associated with TED. Bobbi’s comments seem right on, and from my layperson point of view, my ownn experience, and what I have read, the two things are not related. TMJ does cause that, or you may have a headache whivch might respond beautifully to one of the meds designed for cluster or migraines.
    Best wishes with the additonal problem, hope it does not occur often, and you find a resolulution to it~
    Shirley

    Sue_Conard
    Participant
    Post count: 153

    Thanks Bobbi & all…I think you two are CORRECT, in that, I also have TMJ and a mouth guard to wear, but I ALWAYS want to blame EVERYTHING that happens with my eye changes, etc. on TED. Never gave it a mins. thought that it could be my TMJ kicking in. Time to put the mouth guard in and see what happens!! THANKS ALL!!

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