[snelsen]

#1059839

Well, of course, I guess I can “do” this again, whatever that means.
I have developed double vision in the morning and the evening, lasting 2-3 hours each time.
It is very discouraging, though. I still have much continuing residual with TED.
Light sensitivity, dry eyes, inability to close my eyes at night, all continue.
Plus a graft site in my palate which has not healed 17 months later. Plus having taken amoxicillin for only 5 days, and developed C.Diff.

Other than that, it’s all good! ):
Shirley

[vanillasky]

#1178166

Shirley, just a note to let you know you have my blessings and I hope that this gets better! I, personally, cannot relate. I don’t have TED, but definitely feel for you.

I wish there was just some way we could all be done with this horrid disease. I am so sick of hearing how sick we all are. We all need to get well and carry on with our lives.

Karen

[snelsen]

#1178167

I hope you never have to experience TED. I had no idea of its’ existence, until I had visual changes. Thank you very much for your kind thoughts.
Shirley

[AzGravesGuy]

#1178168

Hi Shirley,

Reading of your recent troubles breaks my heart. You have been a tremendous source of information and a respected, constant reassuring presence to many of us here on the board.

I know you have the strength to get through this difficult time and hope it resolves sooner than later. I am sorry this battle has continued for you and hope this new problem turns out to be something relatively simple and unrelated.

You are in my thoughts and I wish you a speedy recovery.

Rob

[Momof5]

#1178169

I’m so sorry, Shirley! It breaks my heart to read of your troubles. I am praying for you!

[MaryI]

#1178170

Oh my gosh- you have been a source of strength and reason for me. It is just not fair that your eyes are so troublesome for you. I guess, above all, you have to take care not to lose your sight. I am throwing out a big hug to you.

[smtucker]

#1178171

Well, this is very upsetting. I hate TED. HATE HATE HATE! Is there any chance at all that your eyes are responding to spring pollens, etc? The pollens seem to trigger a more acute response in my eyes, but perhaps to a lesser extent.

::grasping at straws::

[Kimberly]

#1178172

Oh, Shirley, I am *SO* sorry to hear this! You are such an amazing source of knowledge and support for everyone on this forum. Perhaps it is hopeful that it seems to be associated with a specific time of day and not continuous? Sending {{{hugs}}} your way…please keep us posted on what happens!

[oahz]

#1178173

be strong. gator had the same issue after OD surgery and the double vision eventually went away.

do you think the new double vision could be from the OD surgery?

[PattiMeg]

#1178174

Oh Shirley, I am so sorry to hear this. As the others have said, you are such a source of strength and knowledge for all of us. And I feel like you and I have so much in common (both nurses, both have the gift (NOT) of TED). I sure hope it is transitory. Keep us posted, we are all pulling for you.

[amosmcd]

#1178175

Shirley,
I am so sorry to hear about this! You have fought a long fight with TED. This is so discouraging. Do you have an appointment to see your neuro-ophthamologist?

I can only relate to having C. diff. I had it after my C-section 25 years ago and it is not pleasant. I hope Flagyl or Vancomycin will have you back to normal soon.

I am with the others who value you so much for your advice, your compassion and caring and friendship.

Take care and here’s a hug for you from me. {{{{{{{{{HUG}}}}}}}}}

Amy

[gatorgirly]

#1178176

Shirley, this makes me so sad and angry. TED is a total buzzkill, and no one should have to deal with what you have been though. I sometimes imagine lighting my (now-deceased) thyroid on fire the way we burned all of our handouts and papers at the end of grad school. I apologize for saying my TED couldn’t have come back earlier today – I forgot that it can show up uninvited whenever it darn well pleases. I’m sending hugs and positive thoughts your way. Please keep us updated. Feel free to PM me if you need someone to talk to.

[adenure]

#1178177

I’m sorry to hear that you’re battling this again. I hope that it will resolve itself! You have been an amazing support to me through out my journey. Our paths were very similar with Graves, hyperthyroidism, having a baby during all of it and breastfeeding. I truly appreciate all of your kind words and support. Prayers for you and healing.

[shasha]

#1178178

Hi Shirley – So very sorry to hear that you are having this problem again. My heart goes out. It has to be extremely scary and frustrating after so long and post surgery.

A question – Have you had some unusual stress lately? I’m asking this because
I haven’t been on in a while (hot phase apparently ending) and I’ve been trying to adjust and start planning for the next step; However, there has been a sudden influx of extreme stress (family, work related) and my symptoms have returned with a vengance. Double vision early and late are the same thing I’m experiencing.
I have found a good opthalmologist (finally after a year of searching) and have a plan for beginning surgery in about a year – but am terrified this latest setback may nix that.
Does anyone else have experience with stress related setbacks?
Again Shirley – so sorry to hear this – keeping you in my thoughts and prayers.

[irishgirl]

#1178179

I went through TED 20+ years ago and luckily for me my eyes returned to normal aside from the fat pads! I had them removed and no one could ever tell I had graves. A week ago I noticed in a photo, my left eye looked different? My endo told me yesterday that I do indeed have graves back in my eye. I can’t believe I’m going through this again. I had rai in 1993.

[Author]

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