[Ski]

#1071294

We can’t name the doctors in public posts, but people who have been through this may send you private messages, and you can discuss individual doctors with them that way.

[nschucky]

#1019380

I have had my thyroid removed, decompression surgery, and eye muscle surgery. Now I am researching and planning to have eyelid surgery for both upper and lower lids. I found a Dr. for this (a plastic surgeon) I think I want to use. He has a good reputation, but I don’t anyone personally who has used him for eyelid surgery. He wants to pull down the upper lids and bring up the lowerlids altogether in one surgery. Another Dr. who I met with does the upper lids in one procedure and the lower lids at another time. I was told to use a plastic surgeon to do the eyelids and this second Dr. is not a plastic surgeon. Also, I was told by the Dr. I want to use that tissue is grafted from the top of the mouth to the lower lid to help hold the lower lid up. I would like to learn more about this procedure and its probable results. I want to make sure this Dr. is using the most up to date procedure. I would like to find out if anyone knows of or has used the Dr. I am thinking of using. Can I find this out on this site?

[vitoa420]

#1071295

I ALSO HAVE TED AND LOOKING FOR A GOOD DOCTOR IN THE N.J. OR N.Y.AREA PLEASE SEND ME PRIVATE MESSAGE OR BETTER YET EMAIL. THANKS

[Jake_George]

#1071296

I have had the the procedure where they use the roof of the mouth for use in the lower eye lid you are discussing. It is called a "Hard Pallet Graft". What it intales is a section of the roof of the mouth is removed. In my case about three quarters of an inch wide by about an inch long. The hard pallet is think like the cardboard on a christmas gift box. It is grafted into the lower eye lids to help to prop them up and it works extreamly well.

Recovery for me was about three weeks. Ask if your doctor offers a dental stint. That is like a temporay denture that covers the roof of the mouth after surger and during the healing process. I had the option for one and turned it down. In hindsight it was not a good decision for me.

The eye doc said it would feel like a really bad pizza burn to the roof of my mouth. It was worse than that. With the dental stint, heat and acids from food would not touch the open wound and would have been much more comfortable post surgery. The roof of the mouth has to heal by letting the skin grow back together.

I am happy with my surgery. My eyes look great. I just wish I had used a stint. Even if I had to do it all over again without one I would do it in a heart beat. The relief was immediate to my dry eyes and they looked great.

It is normally an eye doctor that is also a plastic surgeon that performs this surgery. Please feel free to PM me to ask any questions.

[Kaeljia]

#1071297

Wow, Jake that sounds scary. I’m going in June 1st for the upper lids, and was to told I"m going to be awake for this. THat scares me, I hate the idea of being awake and knowing they are near my eyes. And I thought the dentist was bad. Does anyone know if they remove the fat that was displaced from the Disease. I’ve heard that for some ungodly reason its considered cosmetic? What are they nuts? The fat feels heavy on my eye lids and looks horrible. I can honestly say Im not looking forward to this operation.

[Kaeljia]

#1071298

Ok you guys I need some help.
I know I should have tried to see my Dr about my eyes but I didn’t have a ride. plus its a ferry ride. But here is my issue. I had the "BIlateral Orbital 3 wall decompression. Full name of my operation.
My right eye at one time had this thing pop out of the bottom of my eye, it’s attached some how somewhere… I’ve looked and looked and all we can come to the conclusion of is that it has to be some sort of muscle. But we have no idea. NO amount of googling has solved this question. So my right eye settled down within a few days to a week. Now my left eye which is worse than my right eye, and the surgery was worse. matter of fact they even stiched the right eye closed (everything leads me to believe its part of a muscle its attached at the bottom and pops up from the bottom) I can feel it when I squint which is hard to do, I also feel a pinch almost like a bite where the eye socket was enlarged. About two weeks ago this thing when it would pop out was whiteish to pale pink, and had sticky whitish yellow stuff that would come off like a gooey… anyways.. it cleared up but I could still feel it just under the bottom eye. its hard. Yesterday everytime I laughed or stretched my face too much this thing would pinch again, and I could feel it riding up. TOday has been worse.. I could feel it wanting to pop out, every time I laughed there it would be.. I went to look at it, and could see it peeking up from the bottom lid.. when I went to investigate it popped right out its bloody and it took a few efforts for me to get it to pop back down. The qtip was lightly covered in blood by the time I managed to get it back down. I cried I was so scared, and showed my husband… all he can do is comfort me. As he goes off to work. My daughter trying hard to find help only made her self ill looking at all the eye disease and now she’s worried. Poor girl. She came into the room cringing and crying and it was all I could do not to cry and laugh with her.. and out it popped again making the poor girl squeel. I had my husband take a picture of it. I finally got to the point that it had to be done, and am sending it to my eye specialist. after my daughter gets back with the camera..she just went out.
As I read other’s accounts I have yet to read of anyone having had this happen to them. I’m beginning to wonder if this is normal and knowing the right side had the same thing happen and it went back into place in time will the left eye also go back into place or was this something that I really need be concerend about?
My Medical Employment INusrance has run its course… and now I don’t know what I"m suppose to do… I don’t feel comfortable going back to work, I am not even driving a car still cause I don’t feel safe doing so. Or am I just being rediculouse? thanks for all your listening, reading and help. K

[Kaeljia]

#1071299

well you guys… during my sleep it fell off. It must have popped up and it got stuck to my pillow. yuck I know. I woke up not sure why, and felt something on my face. Man it looks like a red leach. about the size of my baby finger. It also felt like I’d been punched in the eye after that. I did save the little sac bean leachy l ooking thing. LOL I"m going to take it to my Dr. When I see him. I’m now wondering if the other one from the right eye also fell off during my sleep but I didn’t notice.
Hmm my husband wanted to pluck it off the first time he saw it, he thought it was a blood blister of sorts.. wonder if he was right. I still don’t know what it was from. I think it may have been caused from rubbing my eye. My lower lid is swollen now, but if I recall correctly the lower lid on the right eye was also swollen for a day or so afterwards.
ANyways thanks for letting me rant. Have a great weekend.

[Jake_George]

#1071300

Actually you should have gone to the ER when this thing popped out. If for no other reason than to make sure your eye and vision was not endangered.

Insurance considers the decompression and eye lid surgery cosmetic so they do not have to pay for it. I went through the same grief with my insurance company. All it took was a letter from my eye doctor explaining the surgery was needed to protect the cornea and save my sight. No more questions.

As for the upper lid and lower lid surgery, yes you have to be awake. I hated it too. Don’t feel bad there. I shook from head to toe prior to surgery and had to have drugs to relaxe me. You need to be awake because when they remove the skin and fatty tissue they also reattach the upper and lower eye muscles to the upper and lower eye lids. You need to be able to blink and move your eyes to make sure the lids stay out of the way when you move your eyes.

Example when we look up the upper eye muscle pulls the lid up so it is not in the way and drops it again whe we look forward. The same thing happens with the lower eye lid. So you need to be awake enough to move your eyes and follow the doctor’s orders.

It was not so bad. I had my upper and lower lids done and it was not too bad. The result was well worth the effort and minor pain of the surgery.

[Kaeljia]

#1071301

Hi Jake…
yes I agree I should have gone to the Dr… does it count that I saved the misery that had afflicted my eye? LOL
I recently did some research on my upcoming operation, and found a book online… yes an entire book that we can peruse.
Please check it out.
http://books.google.ca/books?id=nu6ija2HeocC&pg=RA1-PA198&lpg=RA1-PA198&dq=bilateral+upper+lids+mullerectomy&source=bl&ots=8tmek7G-OG&sig=ZpU8gMzIP2T7Q6i2ZNhEIZRFDmw&hl=en&ei=o6kVSo-KFczMlQfTzbnrCw&sa=X&oi=book_result&ct=result&resnum=9
I know its a long book well over 195 pages.. I was looking for information, before and after pics of Bilateral Upper Lids Mullerectomy and found this among all the other urls.

I think one of the reasons why I don’t and didn’t go the hospital or see my Dr.. was inconvienence… for more than just myself but for those that are driving me around. Its not just the 45 minute drive there..but its the 2 – 4 hour wait just to get to see a Dr.
So I took a risk that it was not urgent since the other eye was fine after wards.
My eye does have more movement so I think it was a good thing it came off.Guess I’ll find out. It does appear to be all blood..with a darker core..so I’m sure the Dr will tell me when I see him in two weeks.

[Ellen_B]

#1071302

If you want additonal information,call the Graves’ Disease
Foundation at 877-643-3123

[RhondaG4]

#1071303

I have no info on the surgery or TED as I don’t have it yet, but…a few years back when I had dentures…I took Vitamin C afterwards. The Dentist said that I was the fastest healing patient he had ever had. Hope this helps. Rhonda

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