[Lorrainydaz]

#1019583

I’m on countdown to my surgery, which is on Wednesday (3/25) to remove my thyroid. I’m scared but will be relieved that it’s finally gone. I have been on PTU since February and my thyroid numbers have been dropping back to normal and the doctor says everything is good but, of course, the palpitations were continuing and I still felt awful. Then I started to take the SSKI (Potassium Iodide) to prepare for surgery a week ago today and for the first time in years, my palpitations are almost non-existent. I used to get them all the time, constantly, every day, now nothing. I am wondering, all those years I had them when my thyroid numbers were "normal" were my numbers really normal for me. I remember when the palpitations first started (16 years ago) and the doctor did a thyroid test, I remember him saying I was on the high side of normal but everything was good, so it wasn’t my thyroid – but maybe it was. Of course, my eye bulged months before my thyroid went hyper per the doctors numbers. I am hoping that once my thyroid is gone that I will have rid myself of these palpitations and can find some level that is right for me not just what the doctors think are the "normal" numbers. I’m hoping that the last blood test I had done a few days ago will be a number that I can say to my endo, this is the right number for me that keeps my heart steady, let’s try and find the right dosage of synthroid or whatever they’ll have me on after it’s out, to get me there. Is this all a pipe dream or do I have some hope? Any thoughts?

[elf]

#1072667

That is amazing that now, taking potassium iodide, your palps are gone. It makes me wonder just how much all those little minerals/metals we need and if our problems started because of some deficiency in them. So far, I read that Calcium, Magnesium, Selenium, and Potassium are very good to supplement with if you have Graves. I’d go further and think that all those little things like Boron and Copper and the rest of the element table are either flashed out, or we don’t get enough.

(except for the heavy toxic metals like Mercury that should be flashed out periodically).

It sounds that you did have thyroid levels personally higher for you, for 16 years. Yes, after the surgery try and find the levels of Synthroid that you feel the best at. I also dont’ have my thyroid (RAI) and thankfully I found the right dosage right away, and it served me well for 3 years.

Good luck with your surgery.

[Aravindh]

#1072668

Dear Loraine,
Our Best wishes and prayers are with you. We hope and pray that you get normal after the surgery. Wish you all the very Best.
Regards
ARAVINDH K N

[DianneW]

#1072669

Lorrainydaz,

I’m quite sure you’ll get to the right levels after your surgery. There are indeed some wide levels of "normal" that doctors wouldn’t treat, but which may not be normal at all for you, and that’s likely where you’ve been for many years. I’m sure that this thyroidectomy will solve the problem for you.

Best wishes on your surgery Wednesday!

[alice1976]

#1072670

All the best, may tomorrow is your best new start!!!!

[belldandy112]

#1072671

((Hugs)) and best wishes for Wednesday, Lorrainydaz.

I know it’s scary … surgery always is. But just think … by the end of this week, it’ll all be over with. ” title=”Smile” />

[robin]

#1072672

Dear Lorrainydaz,

I’m new at this bulletin board stuff but I wanted you to know you are being prayed for. I had 2 different doses of the RAI and my levels still go up and down. I think the key is that you know more about your body and how it responds than any doctor on this earth. Remember to listen to your inner voice. The PTU’s made me constantly catch every little bug or cold that was going around, so I stopped taking them-but that’s another story!! You are going to be fine and I can tell you that just today-talking to Dianne-someone who has been through what we are all going through-made me feel so uplifted and free. I don’t know why I didn’t think to do this before. Please keep us updated on your progress, and remember there are hundreds of thousands of people with our disease (a disease that my Dad told me was not a real disease-like diabetes). Robin

[mamabear]

#1072673

Just wanted to say that we will be thinking of you tomorrow.

Robin, just wanted to say.. was it the PTU that was making you ill or the fact that your immune system was low and thus susceptible for getting sick faster instead of our naturally good healthy immune system being able to combat a cold fast before we get too sick from it? (i am just curious because I was on PTU and didn’t see a difference with getting sick more than usual). any info would great to hear. Thanks

AGAIN thinking of you and hoping all goes well tomorrow!!!!!!!!!!!!

[belldandy112]

#1072674

Aside from persistent allergy stuff, I haven’t been sick once since diagnosed with Graves — not even when I lived in Alaska, and lemme tell you, that is the arctic, LOL! Biggest problem there was food poisoning, as the meat and produce weren’t as fresh as they are in the states. But I don’t think that counts. I did get more yeast infections (sorry to be graphic, men), and that was irritating.

[hyperm]

#1072675

Hey hope all went well – I’m having surgery in a few months so would love to hear all about how you got on xx

[kaicee118]

#1072676

Best of luck – I’m also having surgery in May so I’m interested in hearing all the details! I hope you’re feeling better soon.

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