Viewing 6 posts - 1 through 6 (of 6 total)
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  • newbie10
    Participant
    Post count: 19

    I’m looking for suggestions on books about Graves Disease that explain all about Graves Disease and what you can expect living with this disease in easy to understand language that a person with Graves Disease can understand.

    My other question is: If you were diagnose with Hyperthyroidism and later with Graves Disease, then you had a total thyroidectomy is the Graves Disease gone or do you still have Graves Disease?

    Thank you.

    Liz1967
    Participant
    Post count: 305

    You will always have Graves but your hyperthyroidism is cured and your antibody level goes down after thyroidectomy. Antithyroid antibodies attack the thyroid and eye muscles, the eye muscles only because they mistake them for thyroid tissue for some reason. Therefore, without a thyroid and if you have no eye disease or it is burned out, the antibodies have no more effect on you than the antibodies you have against diphtheria or polio or measles. They have nothing to attack and thus no way to hurt you.
    When I first got Graves, I read a lot of the popular books on Graves and found them to be misleading and biased, in particular the popular books written by a laboratory technician whose name I won’t mention. Your best sources are medical journals. You can easily access these on Pubmed on the internet. These are of course technical, but the conclusions of the studies are easy to understand and the search feature is user friendly. You can also Google search terms and pay attention only to those results reflecting medical science, like ones by a university, medical center or the NIH. I found good info from the Universities of Michigan, Wisconsin, Mayo Clinic. There is truly a lot of misinformation out there.

    Kimberly
    Keymaster
    Post count: 4294

    Hello – Following is a recommended reading list from the GDATF as well as a link to our January e-newsletter, which includes some good links for resources.

    (Note on links: if you click directly on the following links, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window).

    http://gdatf.org/about/about-graves-disease/reading-list-for-patients/

    http://hosted-p0.vresp.com/1262355/9ca683fd52/ARCHIVE

    As Liz1967 noted, peer-reviewed journals are also a good source of info. Although the discussion can be technical, the abstracts and conclusions are usually written in a way that will allow a non-medical person to understand the basic concepts.

    newbie10
    Participant
    Post count: 19

    Kimberly,

    Thank you for responding to my post. Thanks for recommending the GDATF newsletter & the links on it for reading material about Graves & Thyroid issues, and the peer-reviewed journals and explaining that the abstracts and conclusions are easy to understand by a non-medical person. I anxious to check into reading materials that will help me understand Graves Disease & Thyroid issues better.

    Newbie10

    newbie10
    Participant
    Post count: 19

    Liz1967

    Thank you for responding to my post and answering my question whether I would still have Graves Disease after my thyroidectomy. You always explain things in a easy to understand manner. I’m glad I didn’t go out and buy a lot of books about Graves Disease before posting on the forum. I did take note that when I search things on the internet sometimes I come across a lot of different opinions. I’m glad you noted to pay attention only to those results reflecting medical science, like ones by a university, medical center or the NIH, and that medical journals are a good source & where to go to access them. I have a lot of good valuable information to start my goal of learning more about Graves & Thyroid conditions.

    Newbie10

    newbie10
    Participant
    Post count: 19

    Liz1967

    Thank you for responding to my post and answering my question whether I would still have Graves Disease after my thyroidectomy. You always explain things in a easy to understand manner. I’m glad I didn’t go out and buy a lot of books about Graves Disease before posting on the forum. I did take note that when I search things on the internet sometimes I come across a lot of different opinions. I’m glad you noted to pay attention only to those results reflecting medical science, like ones by a university, medical center or the NIH, and that medical journals are a good source & where to go to access them. I have a lot of good valuable information to start my goal of learning more about Graves & Thyroid conditions.

    Newbie10

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