[adenure]

#1180369

My guess is that everything you’re feeling is part of the healing process. I had the ups and downs and the tightness at the incision. I didn’t wear anything except V-necks for months bc I hated feeling anything on the incision. I would still have sharp pains/ twinges at the incision for weeks after surgery; it is completely fine now and you can’t even see the scar at all.

I didn’t feel normal until 4 months post TT after my Synthroid was right and stable for 2 months, so you might feel up and down for a bit. Stay strong.

[Kimberly]

#1180370

Hi Sue – if the tingling continues, I would check with your doc to see if he/she advises adjusting your calcium supplementation. Hopefully, this is a temporary blip, though!

[Gabe]

#1180371

Hi Newbie! For 9 days out you’re doing great. Don’t stress about the scar unless it gets red, hot, or oozes….it’s amazing how quickly it will heal. Even after 8 weeks I feel a little twinge or pull every now and then. Our necks were sliced open…what can we expect! Haha

I still take a calcium supplement on my own because I’m menopausal and have some early osteoporosis and figured it couldn’t hurt. Tingling and coldness in extremities are classic low calcium symptoms (right here I need to add the usual..I’m not a doctor clause!).

you’ve still got weeks maybe months of ups, downs, and changes to go thru but I can say that, for me, the worst experiences post TT are a breeze compared to the horrible hyper, methimazole, experiences before TT!

I loved being home too…hard getting back not the swing at work…. Enjoy the good days and the sleep!

Cheers,

Karen

[SueAndHerZoo]

#1180372

Gabe wrote:

you’ve still got weeks maybe months of ups, downs, and changes to go thru but I can say that, for me, the worst experiences post TT are a breeze compared to the horrible hyper, methimazole, experiences before TT!

Karen

Amen to that! My husband called from the office today to check on me and I told him that I was feeling a little “weird and off”. He said, “Awww, I’m sorry, honey.” and I said “Don’t be! “My “off days” now are better than my good days were a month ago!”

Sue

[amosmcd]

#1180373

Hi, Sue–

I’m glad things are going okay for you. I’m sorry the hospital and post-op time were hard for you.

My incision was swollen, too. It looked like I had a shelf in the middle of my neck. I was very self-conscious at first, but got over it after a week or so. The swelling really went down after a month and is now gone. I actually forgot to do the massages I was supposed to do, but since I put on sunscreen to the area every day, I guess that counts. My endo says the incision looks really good. So give it time. Once the steri-strips are off, it looks better, too.

Take care,
Amy

[Boomer]

#1180374

See? you start talking about “weird” and next thing ya know here I am…

What a great read- it was the next best thing to being there. The feel-good hit of the summer I dare say!

But seriously Sue- I’m SO glad that things have gone well for you thus far. At no point, though, did I read that you told your (former) thyroid “I win!”. Maybe you’re not feeling confident enough but I think it’s safe to go ahead and say it by now don’t ya think?

Hope you’re feeling better than you have in a long time- talk to you soon

Health and a non-itchy incision to you,

Boomer

[SueAndHerZoo]

#1180375

Ahhhhh, there’s my weird buddy – was wondering about you just a few hours ago!

You are correct…. I did NOT get to say “I win!” as they wheeled me into the OR because they didn’t wheel me….. I was surrounded by a medical team as we WALKED a long distance from pre-op to OR and they were all talking the entire trip. Then they had me hop on the table and before I could even say a quick prayer there was a mask on my face.

If it makes you feel any better, on my second day home when I got out of bed and felt great, I was doing a little happy dance around the house and then looked towards the sky and pronounced “Ha ha – I win!” Why did I look towards the sky? Dunno – guess I just assumed all thyroids go to Heaven.

Yesterday and today were weary days…. mentally and physically. I did a lot on Saturday so maybe that’s my punishment. Bum stomach tonight, too, but don’t know if it’s a bug, the thyroid, or my colitis. Just glad I don’t have to get up and go to work or be functional. It’s wonderful to know you don’t have to go anywhere when you don’t feel good. Quite the luxury considering most of us have been struggling for years to carry on in spite of feeling badly.

Had a couple of “uh oh”, panic-attacky kind of incidents today but none severe and none that didn’t pass quickly. Whoohoo! Let this be the beginning of the end of anxiety!
Sue

[SueAndHerZoo]

#1180376

Yuck….. anxiety.

Today is Day 15 post TT and the prevalent feeling is anxiety. My alarm woke me up at 6:30 a.m. to take my Levothyroxine and I was wide awake at that point….. tossed and turned fretfully. Finally dozed back off about 8:00 a.m. and then my phone woke me up about 10:00. I was in a total state of agitation and anxiety and fear. I think I may have been in the middle of a bad dream when the phone woke me but then the negative and scary thoughts kept pouring in and driving me nuts. I really felt like I was losing it so rather than keep trying to go back to sleep I got up. It’s a little better now, but I am definitely not in a happy place. I’m contemplating taking a tranquilizer rather than white-knuckling this but …. how stupid is this…. I’m saving it as a last resort and don’t want to try one yet for fear it won’t work and THEN what will I do?

Yup, the anxiety is in high gear today. I have always had an anxiety issue so I guess it shouldn’t surprise me that it’s part of this process but I sure hope it’s short-lived!

Can anyone relate or offer reassurance that this is a normal part of adjusting to life without a thyroid?
Sue

[Kimberly]

#1180377

SueAndHerZoo wrote:

Can anyone relate or offer reassurance that this is a normal part of adjusting to life without a thyroid?
Sue

Hi Sue – Hopefully, others will chime in soon with their experiences…and hopefully, this will be a temporary blip for you! If it continues, though, I would mention this to your doctor to see if he/she can give you some further direction.

[Gabe]

#1180378

Hi Sue. I didn’t/dont have that kind of anxiety. Just some days of feeling a little unsettled and anxious. But I know you’ve battled that all your life so I don’t want to minimize how real it is for you. A disruption in your sleep pattern along with the bad dream probably don’t help. Hope your day got better and if not maybe tomorrow will be better….happy dreams tonight!

Karen

[SueAndHerZoo]

#1180379

Gabe wrote:

Hi Sue. I didn’t/dont have that kind of anxiety. Just some days of feeling a little unsettled and anxious. But I know you’ve battled that all your life so I don’t want to minimize how real it is for you. A disruption in your sleep pattern along with the bad dream probably don’t help. Hope your day got better and if not maybe tomorrow will be better….happy dreams tonight!

Karen

Thanks so much for replying, Karen. As usual your response was comforting even if you didn’t experience this. Of course I’m trying to figure out WHY this happened when I should probably just give up and say to myself “Hey Stupid – your entire system is out of whack due to losing a thyroid, why shouldn’t you feel some old anxiety?!” But I also have a fast resting heart rate today so there is definitely something hyper going on for whatever reason.

I see the surgeon tomorrow morning… hopefully she’ll be able to explain why I’m having some hyper symptoms. Or maybe that’s normal at only 2 weeks TT? Too much natural and artificial hormone colliding?

Ugh, wish I didn’t try to analyze everything and could just “accept” but even yanking out my thyroid hasn’t changed that part of me!
Sue

[Gabe]

#1180380

I’ll play doctor for you tonight. Miss Sue, this is normal. Your body has just been thru a major surgery. You have stored hormone and artificial hormone colliding. It will work its way out with time and patience. So relax. Stop over analyzing. Watch a good movie or read a book or do a project. This too shall pass! Signed… Your fake “Dr.” Karen.

[SueAndHerZoo]

#1180381

Gabe wrote:

I’ll play doctor for you tonight. Miss Sue, this is normal. Your body has just been thru a major surgery. You have stored hormone and artificial hormone colliding. It will work its way out with time and patience. So relax. Stop over analyzing. Watch a good movie or read a book or do a project. This too shall pass! Signed… Your fake “Dr.” Karen.

I love you, Man! Exactly what I needed to hear, and even if you were only saying it to make me feel better, it worked.

Just took a beta blocker because my BP was getting high……. then maybe a shower and a good movie.

Thanks, as always, for being here.
Sue

[amosmcd]

#1180382

Hi, Sue–

Hope you are feeling better today! Anxiety is such a debilitating thing to have. My anxiety has always been pretty low level. The only time I needed a tranquilizer is if I have to take Prednisone, which makes me feel like murdering people. Fortunately, it’s been a few years. Mine is just sort of a being a worry-wart about stuff. It wasn’t until I got hyper symptoms the spring before last that I felt badly anxious. And that was caused by being hyper. I think the anxiety caused by thyroid issues is one of the most unpleasant things a person can go through. It makes it really hard to figure out how much is thyroid or med issues and how much is just being anxious. And why do docs lean toward the psych aspect of it? How does having a medical degree suddenly make them be able to tell just by looking at you that it’s psych vs thyroid?

Anyway, I’m sorry to rant about that. I really do hope that your recent anxiety is temporary, no matter what is causing it. I think we just need to get to our sweet spot sooner than later. The sour spot is not fun!

Take care,
Amy

[SueAndHerZoo]

#1180383

Hi Amy and all.
Yes, the anxiety was short-lived, thank GOD! I can handle almost any other symptom except that one. Yesterday I was functional for a few hours and then took an afternoon nap… it was delightful to get some sleep. Today I woke up after having gotten probably a solid 7 hours… heaven. I took it easy for the first half of the day and then got motivated to work on one of my hobbies and was at it for a straight 3 hours without even thinking about how I felt — that was GREAT! When my husband came in and commented about what a whirlwind I was being I reminded myself that maybe I should cool it and not set myself back so now I’m back on the couch relaxing.

I’m thrilled to have all next week off from work… it’s comforting to know that if I’m feeling lousy I can give into it, but I’m hoping that I will be pleasantly doing things I enjoy during my last week off.

I’m supposed to wean off of the Tums this week.. surgeon said the calcium levels were great in the hospital so she probably didn’t need to put me on them at all but said it’s a routine she does with all her patients, just in case.

No serious crash yet….. but won’t be devastated if and when it happens because you’ve all properly prepared me for it.
Sue

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