[Raspberry]

#1060420

This may be my weirdest Graves’ symptom yet – and I’m not sure it is GD but I suspect. Anything weird my body does I blame on GD, right or wrong I guess. My hair follicles on my head are “sore”. When I move my hair from one position it’s been in – say due to being in a pony tail or a beret to being loose, the roots feel achy. At first I thought I had bruised my head and forgotten about it, but now I know it’s the hair! Has this happened to anyone else?

[barbra]

#1182520

Hey Raspberry,

I’m truly sorry but I actually had to smile when I read the heading on your post. You poor girl! If indeed your hair follicles hurt, that would be the ultimate symptom and an insult of epic proportions. Considering how much hair we all have it’s a terrible thought and I really hope that it’s a strange, temporary and unrelated ache.
With GD one can never really be certain what new symptoms may pop up, but I’m sure you just earned first prize for “most interesting”.
Please keep us informed.
Sincerely hoping and wishing that by the time you read this the ache is gone and you feel better and less worried.

Hugs.
Barbra.

[Raspberry]

#1182521

Thanks for the sympathy Barbra! It is a weird thing. It’s most noticeable when I first brush out my hair after I’ve gotten up in the morning as it’s been flattened against my head in the same position all night. I wouldn’t call it painful thank goodness just kind of achy – been going on for about a month. Maybe a year ago I read a post on a Graves board about someone saying their “hair hurt” but I don’t know where to find it now. I’ve been close to subclinical hyper for a while now and have had some significant hair thinning so I suspect it’s all connected. Will talk to endo about it all soon.

[connypie]

#1182522

hi raspberry,im sorry to say,you are not alone in this.my hair has hurt too, off and on over the years.i never mentioned it to the doctors,because i thought they were going to call me a hypochondriac.and mental.lol its similar to a hangover for me,its almost like i can feel every single hair on my head.and it feels sorta like somebody rubbed sandpaper over my scalp.Isnt Life with Graves Disease great!!! Those are sarcastic Exclamation points.

[Raspberry]

#1182523

Thanks Conniepye but sorry you are having this too. I like that description – it’s like my hair follicles have a hangover. When it first started I was convinced I must have hit my head and had bruised my scalp somehow but forgot cause dontcha know Graves affects your memory. LOL It is indeed a g-d disease. Have you noticed whether the hair soreness correlates to your labs at all, running a little high or a little low?

[Kimberly]

#1182524

That’s certainly not one of the more classic symptoms, but since we know that hair loss can occur with thyroid issues it does make sense that *something* would be going on in that part of the body!

One suggestion I’ve heard for people dealing with hair loss is to avoid hairstyles that pull the hair tight – bun, ponytail, etc.. Perhaps that would provide some relief for you as well!

[Raspberry]

#1182525

Hi Kimberly, of course warm weather is here and I want to put my hair up! Weirdly my hair has actually been better since I started this thread – posting to gdatf cured me??

[connypie]

#1182526

Hi Raspberry, i cant remember whether i was feeling high or low,when my hair hurts.

[adenure]

#1182527

Ha! Yes, I experienced that a few times. My husband thought I just had my hair clipped back too tight, but I knew I didn’t. I thought a bug had bitten me; so, I kept feeling around for some critter in my hair where it hurt.

It went away though!

[Raspberry]

#1182528

Hi Alexis, you too? Okay I say this has got to be a Graves’ thing! Thanks for sharing hope life is good for you post TT.

Update – so my hair is doing better though not completely normal, my labs showed that I was definitely in subclinical hypert territory – TSH of 0.3 though my other labs were mid-high normal. Now I will start a new thread on an even more obscure Graves’ hair effects…eyelashes.

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