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  • Raspberry
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    Post count: 273

    Graves’ Disease please please leave my hair alone! So just tonight I noticed that my upper eyelashes are no longer normal – the ends look “crimped” and they are lighter than they used to be, kind of brittle looking and a little wavy. Like hair that’s been colored too many times and flat ironed too much. For contrast before they were a solid dark black, curved, no wave or crimp. I think I remember Shirley having an eyelash issue was that right?

    I’ve been “euthyroid” for the last two years now though my TSH has headed south a few times. I don’t get why I’m still having all these hair problems (hair is half as thin as before) and my emotions and memory take the hit too. Really the mind effects are far worse than the hair effects, but somehow I just feel insulted somehow that GD is after my eyelashes too.

    snelsen
    Participant
    Post count: 1909

    Hi, yes, I have eyelash issues, but they are different. Due to one of the six botched surgical procedures on my eyes and lids, my lower eyelids were positioned to kind of “turn in.” As a result, some eyelashes, touch my eyes, and it is like a foreign object irritating my corneas. Resolution, so far, is to have them yanked out about every month. I can’t do it myself, cause I can’t see that well. A slit lamp is need at the docs. I’ve been very pleased with opticians doing this rather than ophthalmologists.

    Regarding you situation, I have not had hair or eyelid issues at all. Not sure why, I think it has been pretty common.

    Emotions were off the wall when I was really hyper, but I can say they have remained that way over many years. I have always made lists of everything, all my life, love to check things off when I have done them!

    I certainly why you are not happy about your eyelashes. I am not sure if they change as we age, or not. No idea.

    You have bend dealing with all issues for quite a while, and I hope you get a “break” permanently, for Graves’ symptoms.
    Shirley

    Raspberry
    Participant
    Post count: 273

    Hugs to you Shirley! Thanks for your care and I wish you too could have a break from Graves/TED issues too – you’ve done your time! I hope they are able to numb your eyelid to remove the lashes? I wonder if they can ever adjust the lid angle in another surgery? I couldn’t blame you for not wanting to let them try either though. I have to admit I feel quite the wimp to be so undone by what I know are minor issues compared to what you deal with and what Graves’ can do. I think I just started this journey with the wrong expectations – my mother has Graves’ too and had a TT almost immediately back in her youth. She always acted like it had zero effect on her life other than having a neck scar. Not sure why my experience is so different – I’ll be manning up in a minute here and moving forward. Anyway you are an inspiration!

    Carito71
    Participant
    Post count: 333

    Hello Rasberry. I haven’t really had problems with my eyelashes except for a chalazion that came out about a year ago and that would not go away. My ophthalmologist told me that it was not thyroid related. I had never had it before though until last year. He said that I have problems with the glands around the eyelashes but said that it is common to have that and that it was not thyroid related. All I have to say is that the problem was not there before my thyroid problem. The good thing is that it is manageable. I did have problems with my hair a while ago were it would fall off in patches and I was told by my dermatologies that it was related to my body fighting my own hair. That was before I knew I had a problem with my thyroid. That hasn’t happened in a while and I’m very thankful to the Almighty for that. It was terrible and it made me feel very self conscious. I hope your hair/eyelashes change back to normal pretty soon. Hang in there :) I do have to mention that at my last ophthalmologist visit I was told by my Dr that I have a lot of floaters. More than I should at my age. He asked if I had hurt my eye, which I haven’t. I don’t know if it is thyroid related but he didn’t seem too concerned about it. My retina and everything else was fine so he didn’t worry (retina tears or detachment can cause great amount of floaters too). Anyway, … hoping things change for the best for you soon :)

    Carol

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