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Hi, I just found this site and read through a lot of posts. I feel like I can say how I’m feeling about having graves and 2 rounds of Rai, with the last round just 3 weeks ago, and you all will understand what I’m talking about.
I am just so mad at my thyroid. I’ve been sick with graves for 2 years now and I don’t want to feel sick anymore. It has turned me into such a mean and irritable person. I’ve been being treated for it for the past year and a half and there have been so many ups and downs. I’m 5’4″ and usually weigh around 120lbs. The lowest my weight went down was to 108lbs. I now weigh 136lbs. None of my clothes fit, they are all to small, I feel bloated and puffy all the time. My hair is so thin from losing so much of it and now all my greys are starting to show up. I’ll be 37 next month and I’m just feeling so self conscious about my hair, weight, my skin is awful, nails are ugly and brittle and I just have no energy. My husband wants to go have dinner or go out for drinks and I just don’t want to do these things. I feel ugly and not myself. And I know I have a much, much longer road ahead of me before I start to feel and hopefully look better. But gosh, this whole graves disease thing just needs to be over with already! I wish I could say that my husband is understanding about this but I feel like he forgets I don’t feel 100%. He’s very “get up and go” and I’m the total opposite of that right now. I think I just need a hug.
Thanks for letting me vent…
Hello and welcome! I’m so sorry that you are going through such a difficult time. The good news is that there are a lot of success stories on this board from members who have re-claimed their health — and their lives — following treatment.
The following bulletin “An Open Letter to Husbands of Graves’ Patients” might be good reading for your husband.
(Note on links: if you click directly on the following links, you will need to use your browser’s “back” button to return to the boards after viewing. As an alternative, you can right-click the link and open it in a new tab or new window).
As you said, the road back to good health can be a long one, but in the meantime, we are here if you need information, support, or just a place to vent!
I’m right there with ya! And about to scream too…only I’ve gained 100 lbs. heh ahem *sigh*.
I’m about to post my frustrations as well but know you’re not alone!
Here is that HUGGGGG! I know how you feel.
it sucks.
And I am going grey really fast too. I now take Fo-Ti (and herb that retards the greying of the hair).
It actually works (will slow it down – it’s translation means “man with black hair”). Anyway my doctor says it is safe. I will try anything as a band-aid so I can stop crying/feeling hopeless.
Hang in there.
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