[Anonymous]

#1151123

Hi Gordon,

Welcome to the Graves’ Disease Bulletin Board. Tell your wife that I can relate to the eye pain which I am happy to say that I don’t have anymore. I suspect my terrible experience with the eye pain is getting me to be proactive in the resolution of the Graves’ Eye Disease. That darn eye pain was the hardest thing to describe. It would come and go!

But anyway, has your wife been seen by an ophthalmologist that knows about Graves’ Eye Disease/Thyroid Eye Disease?

By the time I got my cat scan, I really had the eye involvement. First I had the watery eyes, then the pain, then the blurry vision, etc…..

Sorry that I am not much help.

Michele B.

[Anonymous]

#1051240

Can Graves’ disease cause eye pain without any signs of eye muscle involvement. This is what my wife has. She gets episodes of severe eye pain.
It’s been going on for the past two years. She was treated with radioactive iodine about 4 years ago. Just had an MRI done. It didn’t show anything wrong.
But the eye pain continues as well as difficulty focusing (blurred vision).
Has anyone had problems like this?

Thanks for listening, Gordon

[Anonymous]

#1151124

Dear Gordon
I was reading your post today and yes Gordon people with Graves disease do get pain in there eyes without even moving them at all.I for one get that all the time,it’s a really sharp pain and it comes and goes all the time. I have to litterly hold on to my eyes as it hurts so bad,believe me it really does hurt,to me it is like a real sharp pain you’d get if you had a toothache,really gets you off guard,tell your wife to hang in there hopefully we will get some relief whenever they find a cure for this disease,as there’s nothing else I can really say to her only that she’s not alone Gordon,take care of your wife and of yourself,Barb

[Anonymous]

#1151125

Dear Gordon
I was reading your post today and yes Gordon people with Graves disease do get pain in there eyes without even moving them at all.I for one get that all the time,it’s a really sharp pain and it comes and goes all the time. I have to litterly hold on to my eyes as it hurts so bad,believe me it really does hurt,to me it is like a real sharp pain you’d get if you had a toothache,really gets you off guard,tell your wife to hang in there hopefully we will get some relief whenever they find a cure for this disease,as there’s nothing else I can really say to her only that she’s not alone Gordon,take care of your wife and of yourself,Barb

[Anonymous]

#1151126

Thank you for your reply. A large part of my frustration is do to the inability for any of my wife’s doctors to say that her eye pain is due to Graves’ disease. Her MRI exam didn’t show any eye bulging or eye muscle swelling. None of her doctors will make the Graves’ eye disease dagnosis even though she was treated with radioactive iodine for Graves disease.
Barb, is your situation like hers? Or do you have some eye protrusion which Sherry’s doctors believe so necessary in order to say it is Graves’ eye disease?
If anyone else reading this can relate or knows someone like this, I will be most grateful to hear from you. My email is gordonk@tiac.net

Gordon

[Anonymous]

#1151127

I had RAI three weeks ago. I have had the flu for the last week. I have been having eye pressure for years and will be seeing the specialist next week. However, with the flu, my eyes have been particularly sore. Today, my left eye got so painful and I couldn’t open it. My right eye I could barely keep open. The pain got so severve my mother ran me to the Drs. My iris was inflamed. It was too late to get into the specialist today. Dr. trying to get me in tomorrow. Doc put numbing drops in my eyes. Gave me codine and took blood to check the white cells and found more influenza I guess. My question is: Has anyone ever had this happen? Is it the flu or Graves or a way that Graves reacts to the flu? I really would like to know and I will tell you I would rather give birth again then have that pain again! Anyone know of this and the what, how and whys??? I would really like to know!!!!

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