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  • Anonymous
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    Post count: 93172

    I’ve read the posts about insomnia and they have been helpful. I’ve tried everything and can fall asleep ok, but I go right into dreaming and sleep very restlessly, waking dozens of times in the night. When I take Ativan I sleep good, but am told that I cannot take this for a long time. It’s been 3 months taking some sort of sleep aid. I’ve read that the insomnia goes away after levels normalize. Any ideas why mine is not going away? I started Wellbutrin as they thought depression may be causing insomnia. I have not been at a normal level for longer than a month. Does it take longer to settle? Any ideas are welcome.

    Carla

    Anonymous
    Participant
    Post count: 93172

    Hi there, I just had my TSH measured on Monday and my TSH came back as 57 – so, extremely high, meaning I’m very hypothyroid. However, even though I haven’t started on my new (higher) Levoxyl dosage I haven’t been able to sleep for days and feel horribly wired at night. Even though I’m exhausted and very cranky during the day, am unable to fall asleep for a nap.

    I never experienced insomnia like this – even when I was very hyperthyroid. This just doesn’t seem possible seeing as how my TSH is so high. Any thoughts on this? I feel like I’m going crazy.

    Thanks so much.

    Anonymous
    Participant
    Post count: 93172

    I forgot to mention that I had RAI about 2 months ago. I felt really great for about 2 weeks one month post-RAI.

    Anonymous
    Participant
    Post count: 93172

    We cannot tell precisely where our TSH is just by how we feel. Symptoms that sound so precise written down (fatigue, for example) can appear in both hyperthyroid AND hypothyroid conditions. And while I haven’t heard of hypo folks having insomnia, that very well might be because most of the people that write to this board have not gone very hypothyroid.

    Anyway, it doesn’t matter. You may be experiencing insomnia, but the reason for it may not be too much thyroid hormone. There can be a lot of reasons for any one symptom we might have. The reason might even be too little thyroid hormone, which your body is responding to with alarm. If your blood test is showing distinct hypo levels of TSH, and your doctor has ordered a higher dose of replacement hormone, you should take it with confidance. If you are skeptical, ask for a second blood test to reassure yourself.

    I do hope you are feeling better soon. And sleeping better.
    Bobbi — NGDF Online Facilitator

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