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  • sutan351
    Participant
    Post count: 39

    Anyone have a second Orbital Deompression? Ready for Lid Retraction Surgery …finally….but still have bulging in my right eye. My Occular Plastic Surgeon asked if I considered a second OD! Not ready to go through that again!

    Have had RAI, OD, two Eye Muscle Surgeries, Sinus Surgery and a surprise Abscess Removal from my Right Eye…from infection.

    I’m still dealing with DoubleVision (Prism Glasses) help, but not sure I could even find a Dr. willing to so a second OD. I live in Tampa Bay Area and had traveled to the Mayo in Jacksonville to have the first one.

    So tired of Drs. and ready (but very nervous) about this lid retraction surgery. Pulling the lid over a (still bulging) eye.

    vistangela
    Participant
    Post count: 1

    Well, you’ve found someone…me!

    My second decompression was 6 months after the first. Both of my eyes were affected but the rt. was much worse than the lt.. During my 1st decompression they did the medial (toward the nose) & the floor of the orbit, A ENT did the nasal approch for the medial & a neuro-opthalmologist also a plastic surgeron) did the floor. I took 5 days of Prednisone after the surgery & eye ointment. 6 months later (the neuro opthalmologist) the lateral wall & during the same surgery he lowered my upper lid. He gave me Decadron (steroid) IV for 24hrs after the surgery then another eye ointment. On my first check up he gave me another medrol dosepak. 2mos. after my last decompression my IOP was 20 down from 30 pre surgeries.

    I haven’t driven much for the past 3 years either until this year in December of last year I had eye muscle surgery & even though my vision isn’t perfect I can see without prisms on my glasses or one eye closed.
    I still have double vision when looking way up, way down, or to the right. But I’m thankful for what I have in straight vision & I’m told if it bothers me too much I can have another corrective surgery (chance of over correction) or prisms put into my lens I am learning to turn my head instead. I also had a bout with ptosis (drooping eyelid) in the opposite eye which I also had repaired in December last year.

    This disease is so mind & body altering that no one can conceive it.
    My second surgery was no worse physically than the first & I’m not sorry I had it. Perhaps it may have been a little easier because by then I trusted my surgeron & knew what to expect.

    One year poat op from my first decompression my eye looks normal except the lower lid droops & my vision is functional. It’s certainally more than I had a year ago. Thank God!!! I am scheduled to have my rt. lower lid corrected in April…I can’t wait.afvallen in een weekdikke buik

    snelsen
    Participant
    Post count: 1909

    What procedure are you having on your lower eyelids which are retracted?
    Is the goal to raise them? I just had palatal grafts to each eye. One moderately successful, the other one seems to be no different.
    Shirley

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