[Anonymous]

#1055149

I’m really hyped-up1 I need to know who had radiation to the eyes.How did it work out? Did it stop the double vision from progressing? I’m under the impression that it literally does away with the anti-bodies. That once the anti-bodies are gone from the eye muscles they won’t come back.Is that true? I saw a surgeon whose specialty is Oculoplastics: Eyelid, Lacrimal & Orbital disorders/surgery.She feels that if I have the radiation right away that will stop the double vision from progressing.And then once stable either surgery to correct the muscles or hopfully it will correct itself.How dangerous is this radiation? I had RAI for my thyroid.My thyroid situation is fine. It’s not there and I’m on on normal levels with synthroid.But my eyes are in trouble.I really liked this doctor,but need more info. Thanks…Gwen

[Anonymous]

#1160318

Hi Gwen, just read your post. It’s been nearly three months since I had radiation. My last visit two weeks ago the Doctor felt that the disease was slowing down. For me I can’t tell. My eyes are still swollen, the light really really bothers them and they weep. I also have bad double vision. My Doctor wants to wait six months before starting any operations. It doesn’t hurt. I think for some people it works faster than on others. Just like to all the many symptoms of this disease everyone reacts differently. I’m dead tired tonight but if I can answer any more questions for you please feel free to e-mail me. Good luck. SAS

[Anonymous]

#1160319

Well Hello to you all (hi Tyler – sorry I didn’t say hi before now). I’ve been doing fantastic up till now. I still feel fine. Still have more energy than I did before I had RAI (not much but I have more). My issue is, I’ve become absentminded. I have NEVER been this way. Heck, I get to work, start a pot of coffee by putting a filter in (correctly ) then added powdered cream (that people put in AFTER pouring coffee into their own mug). I also noticed my designs are missing obvious documentation. I’ve gotten the important stuff but now obvious stuff? What is up with that? I dont feel spacey, I am a little tired today due to lack of sleep AGAIN. Is there anything that can be done? Feel like I have Alzteimers at work.
Kim

[Anonymous]

#1160320

YES,

Oh you poor kid, We do go through this. I found using a Franklin planner worked best for me when I was newly diagnosed. I do use a to-do sheet now every day at work. As I think of what I need to do I write it down. As I finish it I scratch it off.

Some days I have only a few items on my list, others I have up to thirty lines. Just depends on how my mind is that moment.

Last night I had to do one at home. I am also an author, and senior editor for a publishing house. I have four books in edit, two in cover design and three new web pages to design. So I had to write down everything last night. Put it in a sequence that I can work from and start to work down my list.

Jan and I run a home business for editing and manuscript typing, copyediting. That plus working a full day makes my head spin some days.

When I was first diagnosed I would not have been able to do one tenth of what I do today. So life does get back to normal.

So life will get back to normal. We did not get sick overnight and we do not get better that fast either. It will come with time.

We are only a click away.

Jake George
On-line Failitator
Co-Author “Graves’ Disease In Our Own Words”
Author “Grandfathers Song” http://www.grandfatherssong.com
Author “A New Dawn” http://www.anewdawn.biz

[Anonymous]

#1160321

Thanks Jake for giving me some hope on this memory problem. I did start to write things down as it gets embarrassing when you forget your kids’ activities and they are the same night, same time, every week as they have been for the past year.

Guess every once in a while I hear WAY TOO much garbage and beleive it all (other sites) that have blamed everything wrong with me on my decision for RAI. Graves’ is that, Graves’. I had most of these symptoms before I had RAI but its hard to not believe others when they said its because my decision. I thank this BB for being open on every choice we all make. Its nice to have a BB to turn to when a question or concerns arise and knowing one of the mods will answer fairly quickly.
Kim

[Anonymous]

#1160322

Jake,

I agree that the TO DO List is a good way to work. I have one on my desk – somewhere. I can’t keep track of it! (HaHa)

I have learned that we must keep our humor intact, because everything else seems like it’s falling apart until we start on the upward road.

Hang in there everyone!

It’s been a bad day for me. My thyroid must have finally went belly up. I don’t have a lick of energy today. I’m waiting on blood work results.

Trish

[Author]

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