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I have decided to receive RAI – however when I’ve asked different doctors and lab technicians, no one has been able to tell me exactly what the restrictions will be after receiving it. I have heard from some that I will not be allowed to be around children for a week (which is a problem as I’m a middle school teacher.) I have also heard that I will not be able to sleep in the same bed as my husband. I just want to be able to prepare for the procedure appropriately. Any experiences that you all have had would be very helpful to hear.
Thanks!
Nikki
Hi Nikki,
I am writing so that you have a reply, and I am sure you will get plenty of replies! (i chose surgery) And possibly some MORE conflicting information!
1. I looked at the home page of this site, for I know that the new, 2011 current guidelines for RAI are referenced there, and have been mentioned by the facilitators in other posts. However, I found it hard to get to the appropriate information, and the entire article, despite the description describes the post-RAI guidelines.I would presume the radiology department where you will be having your RAI are the best resources. I suggest that you call them, ask them to send their post RAI guidelines to you NOW, so you can see them. I am pretty sure you do not need to worry about going back to teaching after a couple days unless you decide to wrap a student around your neck! (:
If you put restrictions after RAI in the search engine, you will see a ton of posts. I read one by Ski describing her experience, and maybe check that one out first.Generally speaking, medical personnel in other, but related, departments, are not the ones to answer your questions. YOur best bet is the information from where you will be.
It is always a relief when you DO decide, and have an idea of your future path, and the time it takes to have all of this behind you. Best wishes.
ShirleyI agree with Shirley. The nuclear med department where i got my RAI made me sign a form with all the post RAI instructions, and then i went a little above and beyond their recommendations as a precaution for my animals.
I think that where you are going to get this done is your best bet.Good luck Nikki! Remember, you are currently ill and this process does take time, so be patient.
I do know that you will get better and be able to live a full life! ” title=”Very Happy” />Here’s a different link to access the radiation safety guidelines from the ATA. (You will need to use your browser’s "back" button to return to the boards after viewing). The radiation safety guidelines are in the last link on the left-hand side of the screen. There are two separate sets of guidelines — one for the treatment of hyperthyroidism and another for the treatment of thyroid cancer.
Thanks, Shirley, for the heads up about the link on the home page. It turns out that the free access was moved to a different link. I will get this updated.
@NikkiDay – These guidelines should give you an idea of what to expect, but as Shirley and miltomal said, definitely check with the nuclear med department at the facility where you will be having the procedure done. Guidelines will vary from state to state and facility to facility.
After I received RAI, I was told not to be around people for the first couple of days and then after that just not to get people close to my neck. Everything went fine, I just took a weekend to myself after I had it done on a Friday morning and on Monday I just kept my distance. They ask you to do this because the radiation can transfer to someone else and cause their thyroid to shrink and give them problems.
Hi Nikki,
This answer might come after you’ve resolved everything, but I wanted to make sure we had a good, basic response to the reasons behind the restrictions, because that helped me understand the differences of opinion that have occurred over the years — I had RAI in 1999, and I’ve seen some places that relax the restrictions I was told to observe, seen others that have even further restriction. Here are the basic elements to the restrictions.
First, there are two different types of exposure that occur for an RAI patient.
At first, when you take the RAI, your body takes a certain percentage of it up into the thyroid, and the remaining RAI is flushed out of your system within the first 48 hours, primarily through the fluid waste systems (saliva, urine, sweat). For those first 48 hours, restrictions will attempt to limit others’ exposure to your saliva, urine, or sweat, as the minute bits of RAI that may be within those fluids could, theoretically, be taken up into another person’s thyroid, if they ingested it, which could destroy part of their thyroid. Nothing like what the RAI patient expects to experience, but it could reduce thyroid function in a healthy person, so we attempt to make that exposure impossible. This is why we don’t share utensils, prepare food for others, and why we flush twice after urinating. It’s also the reason behind instructions to drink lots of fluids and urinate often — to get the excess flushed out as quickly as possible, and dilute the amount in the urine as much as possible.
After that first 48 hours, there is still radiation within your thyroid, and then that exposure becomes the primary issue. RAI has a half-life of 8 days, so every 8 days, the amount in your system is reduced by half. You can look at your dose level and make some calculations to figure out when the amount of radiation within your system is truly infinitesimal and no longer an issue. In the meantime, my doctor told me the rule was to consider time, and distance, in exposing others. You need to consider how near you hold someone (or a pet) near your neck — if you are going to be with someone for a long period of time, you should keep your distance in order to limit their exposure. If you need to be very, very near someone, limit the amount of time. Radiation is something that our body “builds up” over a lifetime, so the idea is just to minimize anyone’s exposure in order to limit the lifetime “dose.” Any excess exposure won’t create an immediate emergency, but may add up over a lifetime.
I hope that helps!
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