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  • Anonymous
    Participant
    Post count: 93172

    Hi all,

    I have been researching the web again because the endo has suggested that I go ahead and do the RAI because my methimazole dose is going up instead of down after 8 months. I thought the labs in June were going to be great since I had gained a few pounds and felt pretty good. Instead, the maintenance dose was raised from 10 to 20mg a day. That’s pretty high for maintenance. She said I was too “hot” to RAI right now, so if my system calms down, probably in September.

    So,reviewing other sites against RAI still hasn’t convinced me not to do it because I can’t help but wonder how many people had great success(and don’t write on boards) compares to those who had serious problems (and do write on boards). I haven’t been able to find a real stats about it…just that “it’s been done for 50 years with success” and no increased risk of cancer, and from the other side, “Don’t do it!You’ll end up in Hypo He#%!

    Still in “Wander” land…but leaning toward RAI

    Tami

    Anonymous
    Participant
    Post count: 93172

    There was a study done in the UK a few years ago, using death certificates of people who had had RAI, looking for cause of death. It was one of the many studies that have been done over the decades trying to look for possible “issues” with RAI.

    I found this study to be of interest for two reasons. The first is that it was limited to the UK, but it included tens of thousands of people. I had no idea that there could have been that many people in England (and perhaps Scotland, IReland and Wales) who could have undergone RAI. So we are talking lots of people, even though I do not know of anyplace that could quantify exactly how many people.

    The second point of interest was that the study concluded that, in general, “being hyperthyroid” for a period of time was the most consistently logical reason to explain any of the elevated types of death over the normal population.

    So, please, if your antithyroid medications are NOT controlling your hyperthyroidism well, you do need to consider the alternatives. Being hyperthyroid is the enemy, not the treatment options at this point in time. If not RAI, perhaps surgery. Your doctor is in fact your best guide.

    I know this is a very difficult decision, and I wish you well,

    Bobbi — NGDF Online Facilitator

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