[Anonymous]

#1028570

Hey!

Yep, the double vison thing is me all the way. Been dealing with the over active thyroid issue and double vision and it will be a year next month. During this time tho I have been seeing a thyroid specialist (endo) and have had treatment for the thyroid gland. I have went the route of steriods for about 8 months. Started out on 60 mg then went to 100 mg. They really did not help the eye at all but at least it kept it from getting any worse. But the side effects of this drug did me in. Rapid heart beat (still deal with it at times) high blood pressure (still a problem) and sugar diabeties and weight gain. The sugar bug runs in my family (mother has it) but since I have been off the steriods my sugar level has been much better and I still check my sugar level about twice a day. Also did the radiation treatment for the eyes. Will be going back to the specialist who treated me with the radiation at the end of this month for another look.

I have been told that after the radiation treatments they like to wait 6 months to 1 year before they do surgery to give the radiation a fair chance. But for me my endo and eye specialist really don’t think I will be any better in another six months. I just hope they don’t make me wait another 6 months. Beside all of this I am also having problems with the immune system and might have *Fibromyalgia* I have not been told I have this yet but……between my primary care physican and nerve specialist they both seem to think this is a srong possiblity for me. Seeing a arthritis specialsit too! Have seen him once and will be seeing him again next month. My primary care physican said that this is why she sent me to him in the first place.

Well, I still have a long ways to go I now and if it comes to pass I have this disease which effects the immune system and tendions and mussels in the body my whole life will change. Right now I am still working, driving and still being able to take care of myself so in spit of all the drama I am dealing with life is still somewhat good.

Well, time for me to run but nice chatting….I will continue to pray for all of us graves troopers.

Take care

[Anonymous]

#1100238

Hi, This is my first posting, though I have been looking in on this bulletin board and learning about Graves here since my diagnosis in February 06. I share my TED story (to date) in hopes that it will help someone else.

One of my earliest symptons was double vision. I live in a large metropolitan area close to a university-affiliated respected eye center. However, I still had difficulty finding the right treatment for my double vision. The first eye doctor recommended by my Endocrinologist treats mainly Graves patients but specializes in bulging eyes. He said there was nothing he could do for me but monitor my eyes until they stabilized (at least one year). My double vision progressed from am and pm, to all the time, and I too, like the woman from Alaska, felt that my life as I knew it was over. I could not drive, go to parties, teach classes, go to meetings, etc., without covering an eye, which I was mostly too embarrased to do and it was strange and uncomfortable.

At a regular follow-up mting with the eye dr., I mentioned that my life was wrecked because of the double vision, and he said

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