[Anonymous]

#1028505

Joy,

Thanks for the encourgement. Yea, I know that this is s long, long process and all. But I will try to be a trooper and hang in there. Not sure what the end of this month will bring when they look at me again. So far there has been little imporvement in the eye situation but we will see. Thank’s for all your prayers and I will keep my little chin up.

You hang in there too!

Charlene

[Anonymous]

#1100035

I am curious to know whether or not any sort of rash is associated with Graves. I attribute it to always being hot and sweating so darn much, but not sure. Can anyone offer some help?
Thanks…
~Shell

[Anonymous]

#1100036

A rash is not part of Graves’ disease. It can be from heat as you say. I can also be a reaction to the medications you are taking for treating Graves’ disease. If it is from the meds you need to tell your doctor.

We are only a click away.

Jake
On-line Facilitator
Co-Author “Graves Disease In Our Own Words”

[Anonymous]

#1100037

I can only tell you based on my own experience I had red bumps or a rash which started a month after the onset of Graves. Now I am taking Tapazole for the last 3.5 weeks and it has gotten worse. However, I feel so much better I think it is worth the trade.

I called my endo to find out if I could cut back the med to 1/2 and see if that would help the bumps, but he recommended that I try benadryl 25mg at night and see if it helps. I’ll let you know.

[Anonymous]

#1100038

Hi all,
My daughter is 7 and has Graves. 1 year ago she was hypo, as well as 6 months ago. Her bloodwork now (1 1/2 months ago) showed her as hyperthyroid. She had the radioactive iodine scan done and “absorbed” 100%.

Pediatric Endo. put her on propranolol 20mg 3X a day and then put her on methiminazol(spelling??) 20mg 2X a day. All was going well for about 2 weeks and then she started to get itchy. Next day a rash and hives all over her little body. Her heart rate was up to 160 and a temperature of 101. Dr. took her off thyroid meds. put her on zyrtec and predisone to help her with rash, hives and itching.

Went for a second opinion to a doctor in NY city. Dr. there said the same as my first Pediatric Endo. She also did not give me much hope in the PTU working.

Has anyone ever had the rash, hive, itching before? Were you able to live with it while taking zyrtec? I don’t want to believe that the methimizole is making her break out. That is 50% of our chances to handle the Graves without more “drastic” measures.

Both doctors recommended RAI if meds don’t work. I read here how concerned people about doing RAI. I don’t trying to make the decision for my 7 year old.

As for behavior…… well without thyroid meds. she is like a ADHA child with 20 pounds of sugar in her. She can make me laugh, get me angry becasue she don’t STOP and then to crying because I know she can’t stop.

I feel bad for her also because she does have red rash like areas on her body and face. Sometimes kids, and adults will say :what’s wrong.

I am desperate for any combination of meds, encouragement that methimizole didn’t work and PTU did….anything.

I ask God not to take away the disease,just let her be able to take the meds for now…till she is older and we can do something else. She is too young to go thru anything more. She asked me one day why can’t she be normal. It breaks my heart-she is my baby girl and I want her to be healthy and happy.

………………………..

[Anonymous]

#1100039

When an illness hits adults we feel we can handle it better. When it hits our children it breaks our hearts. We want to do what is best. The Antithyroid drugs can cause rashes. You stop the meds if a rash develops because it shows the body is not accepting the medication.

Other options are a different antithyroid medication if she can tolerate it. Or if she goes hyper again, then to think about RAI or surgery. RAI in a young child prior to her reproductive years is an option. Thyroidectomy is a bit more dangerous. Both are done on prepubescent children.

Look at the options that are offered. RAI is safe and has been done for over 60 years. the con side is it takes time for the thyroid to die and your child may have bouts of hyper and hypo and need her meds adjusted for up to a few years.

A thyroidectomy, is more dangerous because it is considered major surgery. If you decide on this option ask them to use a sensor for her vocal nerve. It tells the surgeon that he or she is getting close to the vocal nerve. If the vocal nerve is damaged she may lose part or all of her voice. With the nerve sensor it is very rare that the vocal nerve is bothered.

She will be OK mom; I have had at least three children in my local support group. Two had RAI and one had surgery. All three are in school and doing great. To them it was like having their tonsils out or taking an oral flu vaccine. They take replacement hormone and their lives go on.

Right now it seems like the end of the world. We are lucky we live when we do. Graves’ is treatable and it is safe. She will be fine and someday you will look back and remember your worries and smile.

We are only a click away.

Jake George
Facilitator
Co-author “Graves’ Disease In Our Own Words”
Author “The Red Man In Me”
Author “Grandfather’s Song”
Author “A New Dawn”

[Author]

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