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  • alsorkin
    Participant
    Post count: 1

    I am an 81yr old man with no prior thyroid or eye issues until a few months ago. My double vision is quite severe requiring use of an eye patch on one eye while driving but not while using a computer or reading. An MRI revealed swelling and inflammation of the muscles of both eyes. Thankfully, no pain.

    After my neuro-opthalmologist reviewed my blood tests and saw high TSI (263% of baseline) diagnosed this as TED I was seen by a endocrinologist and put on levothyroxine but suggested that thyroid removal was likely going to be needed. After 4 weeks with very positive blood test results I was also just put on a block-and-replace regime of treatment by adding methimazole. Next endo doc appointment in 3 weeks.

    If thyroid removal surgery is recommended soon is there a surgeon in the Atlanta GA area to consider?

    Kimberly
    Keymaster
    Post count: 4294

    Hello and welcome – The American Association of Endocrine Surgeons and the American Head & Neck Society both have search engines where you can locate a surgeon near you.

    https://www.endocrinesurgery.org/Membership/Find-a-Surgeon

    https://www.ahns.info/find-a-physician/

    Make sure you get someone who does the procedure frequently (I’ve heard varying numbers, but approx. 35 or more per year) and who is familiar with thyroidectomy specifically for autoimmune thyroid disease.

    Wishing you all the best!

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