[gatorgirly]

#1062026

Hi Suz,

I am 16 weeks post RAI today exactly, and also am still hyper. I don’t have the numbers in front of me, but I’m as frustrated as you are. I will NOT do the RAI again. I started having all sorts of other seemingly unrelated problems from the day I took the pill. I am 26 and the renowned thyroid surgeon in town highly recommends I do anything BUT surgery with all the risks to my voice, parathyroids, scarring (I get keloid scars), etc. However, there is a University of Florida (four hours north and I’m an alum) surgeon who has been doing da Vinci thyroidectomies for quite some time through the armpit. If I require additional treatment, I’m going to schedule a consultation with him regardless of what my insurance company (I work for the hospital here) will pay for.

My endo is repeating my labs every 4 weeks starting on Monday. If by the end of July I’m not hypo or euthyroid, I need to decide between surgery and another dose of RAI. Hopefully by then, you and I will both be closer to recovery. Feel free to send me a private message and we can exchange emails.

[Suz01]

#1062027

Sorry to hear you are going thru a similiar experience as me. I’m at 20 weeks post rai now and had blood work done yesterday.
TSH still 0.01 and free T4 is 2.44 . Last endo appointment he said free T4 levels should be doing something at this point but not.
I have an appointment with a surgeon from the UW hopsital in Madison Wi on June 20th, will find out then when surgery will be. Although I’m still on beta blockers, pradaxa and methimazole I have been feeling good. Hope after surgery I don’t feel worse again.

[teacherhelper]

#1062028

I had RAI Sept 30. By mid Dec I could feel that I was hypo so had blood work done. I was put on 75 mcg of synthroid. By the end of Jan I could tell my levels were off again, had blood work done and was upped to 100 mcg. I was increased to 112 mcg’s in early March and am now stabilized. It’s amazing how different I feel now that things seem to be on the right track. I still get tired and know that I have to rest when that happens, but my energy levels are more like I used to be before my world seemed to fall apart. Right now I’m on three blood pressure pills (100 mg of atenolol, 5 mg of amlodipine/besylate, and 40 mg of Diovan). I’m hoping that the next time I see my PCP I might be able to wean myself off one of the BP pills.

There is a light at the end of the tunnel. We just have to be patient, which is a hard thing to have when one has GD. Hang in there.
Joanie

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