[Anonymous]

#1076852

It’s a bit too early to give up on the RAI treatment working. But I can completely understand your frustration right now. Have you SEEN the doctor recently? Is there a reason why you are not back on ATDs if you are severely hyper right now? If you’ve mentioned it to staff, but have not seen the doctor to argue your case, please make an appointment. You are suffering, and there ARE typically things doctors can suggest to alleviate it. Sometimes we patients must nag a bit. Squeaky wheels, etc….

And, yes, the overly-emotional responses to things ARE normal. First, you are ill. Sick people are more emotional, typically, than well people. SEcond, you are majorly frustrated by the apparent lack of effectiveness of your RAI. Your hopes were up, and now they are in the basement. That, too, makes folks emotional.

Are you taking things easy? Or have you been pushing yourself with the thought that “the end is in sight?” Please: treat yourself the way you would want to see your best friend treated if she felt as rotten as you do.

I hope you feel much better, and very soon.
Bobbi — NGDF Online Facilitator

[Anonymous]

#1020350

hi,
I am soon to be 38 years old.i was diagnosed with GD 9 months ago. i was put on PTU for a few months and went off it due to elevation of liver enzymes. i was put on methimazole but stoped taking it sinced it caused horrible muscular/bone pain. i was sent to have RAI. after a scan and an I131 absorbtion test it was determined that i get 10mq of raidioactive iodine. the first week after the treatment was such a pleasure! everything seemed to slow down and i even lost some wieght (i was one of those who gaind 6kg instead of enjoying the “perk” of GD). after that week it was evident i was hyper again. every week it gets proggressivly worse.i am now at 8 weeks post RAI and will probably go for another try.
i have a hard time sleeping, if i do- it is sort of a light sleep and when i wake up i feel as tired as i did before going to bed. anything that touches any sort of emotion (happy things, sad, anger) sends me into a many hours of weeping. who does that????i often feel more embarresed about losing control than the actuall thing that set me off crying.i now have muscular fatigue and i feel 80 years old.i put off social life because i am always tired. i feel like i need to push through every day.
i feel that my body has been put through the mill. any external stress becomes amplified 100-fold.
i recently found this site and it was comforting to know others have similar experiences.
however, as i wait for the second RAI treatment and still off any sort a anti-thyroid med, i wonder if this ordeal will ever be over.
has anyone felt the same?

[Author]

Posts