[brrakes]

#1059011

Hello, I’m one of the newer members. Here’s a little background. I’m 29 years old and I was diagnosed with Graves’ in January. I’m pretty sure I’ve had it for several years, but it’s hard to pinpoint exactly when. My RAI is scheduled for May 25th, and I’m looking forward to it. Well, you know what I mean. I’ve suffered from anxiety, mild depression, heat intolerance, etc.

My question is, I’m taking 10 MG twice a day–does this seem high? I’ve noticed a lot of people on this forum saying they take 5 MG daily. I was just curious. I know everyone is different though.

I also have a comment. My family doctor is the one that initially found out that I had a thyroid problem after doing some bloodwork. He decided to do a bone density test to see if I had lost any bone mass (since hyper can cause osteo). Turns out that I have ostopenia, which can be the precursor to osteoperosis. I think anyone with this disease should talk to their doctor about scheduling a bone density test if their doctor hasn’t already mentioned it. I’m relieved to know this was caught early. I’m currently on a very high dose of vitamin D.

I appreciate this message board. It’s really helped me out and I know it will continue to help as I go down the long road to recovery. Thanks.

Brandy

[Kimberly]

#1171552

Hello and welcome! Yes, great advice about the bone density testing. I actually had some bone loss that was discovered after my diagnosis, but fortunately, some of it has recovered post-treatment. (4.5 years on ATDs).

As you said, everyone is different on the dosing. I started off on 5 mg 3 times per day — and that was enough to send me almost hypo in a matter of a couple of months. The key is to contact your physician if you start to experience a worsening of hyper symptoms, or the onset of hypo symptoms. Every patient is different, but common symptoms of hypo can include fatigue, joint pain, unexplained weight gain, constipation, dry skin, cold intolerance, and slow pulse.

Take care!

[emmtee]

#1171553

I’ve wondered about other people’s dosages, too. I started out at the same dose as you (20mg taken in 2 doses.) Now I’m taking 60mg and my T-4 and T-3 are finally in the normal range. (TSH still hasn’t budged in 4 months.) I was a little concerned about the dose and asked my endo. She said that 60mg isn’t the max – that we could go higher if it had been necessary. She reassured me that side effects can happen at any time at any dose, so I don’t need to worry about being at higher risk for them at my dosage.

I’m 47 now, and past tests had shown my bones to be above average in density. (Until I developed Graves’ and lost a lot of weight, I was overweight for most of my adult life, so I think my bones had to be extra strong to carry all of me around.) I had symptoms (tremors, weight loss) for about a year before being diagnosed. I started taking vitamin D years ago on the advice of my old doctor (tests showed my levels were low), but I wasn’t taking it (or any of my other vitamins) at the time my symptoms began. I’m back on it now, though.

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