[Kimberly]

#1183128

Hello – I have never heard of vision therapy being used for thyroid eye disease, although it is used in another condition that can cause double vision due to the eyes not focusing correctly. Here’s some info from the Mayo Clinic:

(Note on links: if you click directly on the following link, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window)

http://www.mayoclinic.org/diseases-conditions/convergence-insufficiency/basics/treatment/con-20033203

I would definitely ask the practitioner if they have solid research proving that the process works for thyroid eye disease before shelling out that much $$.

Also, @conniepie – Did you post a reply to this thread that is missing? The GDATF received an e-mail from you with what looked like a reply to this thread. If that’s what it was, I will repost here. NO idea how that happened!!

Update: I think I know what happened. If you click the “Subscribe” button at the bottom of a message, you will be notified via e-mail when there is a new response. The e-mail includes the text of the response, *but* if you want to reply to that person’s post, that has to be done by logging back in to the forum. I know that some forums allow you to respond directly via e-mail and your message will post automatically, but we don’t have that functionality. If you hit “reply” to a notification e-mail, the reply only goes to the GDATF mailbox!

[connypie]

#1183129

hi guys,yeah flora i get the same pains and muscle aches.told my primary about my weak and hurting wrists.its arthritis,thats always his answer.told me to put wristguards on.Kimberley,i will now read the link that you sent me and i will have a chat with the eye dr tomorrow about this therapy.its a different dr ,same practice.

[connypie]

#1183130

Hi i just found something interesting.My cancer drug Tamoxifen can affect thyroid labwork.did anybody know this?ive been taking it for 4.5 years.i wonder if it was affecting my bloodwork all this time?and thats why i feel all over the place.ill have to ask my chemo dr next time i see him for my regular checkup.Been cancer free since april 2010,so dont have to worry about that. connypie

[Kimberly]

#1183131

Hello – There were some *very* old studies that found a link around 20 years ago, but I don’t see this in the prescribing info for Tamoxifen. It’s worth asking your doctor, though!

[Kimberly]

#1183132

Missing message from conniepie (posted at her request):

hey shirley,i already ordered the glasses,i too hope they help.i will give the vision therapy a try,if it is a way to avoid eye surgery,ill do it.but if i dont see any improvement,i will go to wills eye hospital.i live near philadelphia.i did ask the regular eye dr about the cataract surgery i will eventually need and he said there would be no problem,if my eyes are stable.but i cant find anything on the web about it.does anyone here have it done? conny

[connypie]

#1183134

Hello Everybody, i went for my first vision therapy.but before i paid all that money out of pocket,i spoke to the dr about it.i was told,that they are not sure if the double vision is from graves TED,or simply a misalignment of the eyes.i then asked if this does not work am i looking at surgery down the road and he said yes.apparently my eyes are looking wide,instead of straight ahead.so i have a very hard time bringing them in to look up close.i picked up my new glasses on saturday(that was quick) and at first wasnt very impressed in the store.but there was alot of glare coming of everything.on the ride home that night from our part time job,we drove through country roads,i said OH WOW.my husband :What? ME:i can see every blade of grass on the side of the road as we were traveling at 45 mph.and no highbeams.i did not know my night vision was that bad before.i would say 80% improvement.i still have trouble focusing close up,but not as much as before.everything is much crisper and clearer and even a little brighter.i still cant read a license plate at 40 feet without squinting,but its better.of course i was seasick as hell the last 3 days and nauseous,from the new glasses and the therapy,but i was told about that.today so far no headache YEAH. HURRAY for High Definition Lenses.still cant dial cable tv in in them though.lol connypie

[barbra]

#1183135

Hi Connypie,

I’m glad your new glasses are helping you.
I need new one’s too but I have to save up some more money, my insurance will not pay for them. Oh well, one thing at a time.

Sending happy hugs.
Barbra.

[Kimberly]

#1183133

connypie wrote:

Hello Everybody, i went for my first vision therapy.but before i paid all that money out of pocket,i spoke to the dr about it.i was told,that they are not sure if the double vision is from graves TED,or simply a misalignment of the eyes.

Hello – A second opinion might be helpful before you continue paying out of pocket for this particular treatment. Obviously, I’m a fellow patient, not a doc…but I would think that CT/MRI scanning and other testing would help the doctors to pinpoint the cause of your double vision.

Great news about the new glasses!

[connypie]

#1183136

Hi you all, well its been a couple of days.so far im getting improv connypieement with the new glasses,was able to do a bunch of computer work without getting too much eyestrain.with the vision therapy i will have to wait 1 month,before they can tell if there is any improvement.so i will wait it out,somewhat impatiently.lol im feeling better otherwise too.can tell im hypo,im freezing.

[Kimberly]

#1183137

Hello – If you know you are feeling hypo symptoms, definitely call your doctor’s office and ask for a quicker set of labs. If you are in fact hypo, it’s better to catch this early, rather than let it continue!

[connypie]

#1183138

Hi you all,Happy Thanksgiving!! Well ive been doing the vision therapy for a while now.the dr said there is improvement.i dont have so many headaches anymore and it seems the double vision has eased up a little.i still have to do about 2 more month of it.with the new glasses i have 20/20 vision.YEAH!!!!on the old eye chart its 2 or 3 lines lower then 6 weeks ago.maybe in a couple of weeks ill try a crossword puzzle again.thankyou everybody for the support and advice.Have a nice Turkey Day!

[Kimberly]

#1183139

Great news – hope that you had a happy Thanksgiving as well!

[Author]

Posts