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Got my path report today. And now I’m confused. Nowhere on it does it say that my thyroid had Graves’ disease & I wonder if that’s typical in Graves’ patients. Here’s the FINAL DIAGNOSIS section:
-Focal granulomatous inflammation & fibrosis (see comment).
-Few colloid nodules.
-Changes consistent w/ treated diffuse hyperplasia.
-Negative for malignancy.
Comment: “…the constellation of findings in these areas is most suggestive of granulomatous subacute thyroiditis (de Quervain thyroiditis)”.Guess that I’m wondering if they typically don’t mention Graves’ on these reports? Or maybe one of these terms is doctor-speak for Graves’ changes? Or maybe there’s nothing significantly different, pathologically speaking, between a normal thyroid & a Graves’ thyroid? And I’m really confused where the Quervain thyroiditis diagnosis fits into the whole thing (an illness that goes away on its own apparently). Perhaps a side effect of iodine drops? I’m going to ask my docs, but curious in the meantime.
Wondering if Graves’ is mentioned specifically in others’ post-operative path reports? Or if this wording looks pretty standard.
In a way, it would be a relief to find out that it doesn’t say Graves’ anywhere cuz I don’t have Graves’. In another way, that would be really upsetting since it doesn’t sound like thyroiditis requires ATDs, TT or RAI – just time.
Hello – As fellow patients, we can’t second-guess your initial diagnosis, but here are a couple of thoughts. One feature of de Quervain’s thyroiditis is that it is generally self-limiting, and goes away on its own. However, as I recall from previous posts, you had been experiencing issues for quite some time before finally getting a diagnosis. Also, if you responded positively to the initial course of anti-thyroid drugs, that would point in the direction of a Graves’ diagnosis. With thyroiditis, hyperthyroidism is caused by damaged thyroid cells pouring out their stored hormone, so anti-thyroid drugs won’t have an effect. Your surgeon, though, is in the best position to give you an informed opinion on this issue.
Everyone here can totally understand how angry you would be if the Graves’ diagnosis was incorrect. And you would be totally justified in feeling that way! However, in the meantime, a really important question is how do you *feel* right now? If you are feeling great, wonderful! If not, I think it’s important to invest your energy with your endo in terms of getting levels stabilized and finding the “sweet spot” of replacement hormone that will get you to feeling your best.
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