[Sneagle02]

#1060591

I had my RAI 2 weeks ago. I felt awful,leading up to it, felt very hyperthyroid off the methimazole for a week and awful after it as well. Not specifically from the iodine but from the Graves.
Now I am feeling better than I have in a VERY long time and realize how bad I felt before. I was barely able to stay awake at home, although I was still working full time. I had brain fog and could not get anything done, the lack of ability to start anything, even as simple as answering an email or loading the dishwasher was amazing. I told my 9 year old son that I “just needed to rest” all the time, could barely make sure he got his homework done, etc. And I was SO irritable.
This last week I was able to watch a movie with him!!! Low standards, I know. And we read together and I found my patience and it’s all great.
But- I know I will become hypothyroid soon and I am terrified of feeling and again. I don’t think I can cope. Well, of course I will because what choice do I have but it’s a scary thought. I get labs done in another two weeks and we’ll see how things are.
Anyway, thanks for listening.

[barbra]

#1183553

Hi Sneagle02,

With the RAI in the rearview mirror you can now look forward towards normalcy.
It’ll take a bit , there’ll be some glitches along the way, but you’ll get there.

I had RAI in July 2013 and have now been in the normal range since March 2014.

Be patient, take your time and let us know how you are getting along. All of us here will try to answer your questions, listen to you whine, rant and rave because we’ve all gone through this tunnel. It seems that not all cases go the same way but there is not a symptom or ache, brain fog, insomnia or hair loss that at least a couple of us have not experienced.

I wish you all the best.

Hugs.
Barbra.

[Kimberly]

#1183554

Thanks for the update! You should be getting frequent labs – every few weeks or so – to make sure that your doctor starts you on replacement hormone at the right time. And if you start to feel hypo symptoms in between appointments, definitely call the doc’s office to let them know you need labs right away.

It’s also important that your doctor is on top of the latest medical guidance that warns *against* using TSH as a benchmark for deciding when to start replacement hormone. Free T4 and T3 are better benchmarks, as TSH can remain suppressed for quite some time.

Sounds like you are making good progress, though!

[Author]

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