[Babygirly]

#1058700

Hi all. I was diagnosed with graves fairly recently. My endo was convinced it was not post partum thyroiditis firstly due to the age of my baby (she has just turned 1) secondly I tested positive for antibodies, and third a history of autoimmune disease.

However, in my earlier post I explained I have been refusing/ignoring treatment. My last bloods showed a marked improvement and I am right on the edge of the normal range for both free t3 and free t4 (tsh low but to be expected).

Sounds to me like I have got post partum rather than full blown graves. But as far as i can tell, the only way to know for sure is the uptake test which i can’t have because of my little girl.

Has anyone got any experience of ppt? Or graves which spontaneously resolved without treatment?

[snelsen]

#1169453

Hi, sorry I missed your post.
I had Graves’ after baby. But Graves’ is Graves’. I do not think because it is or isn’t post partum Graves’ it makes any difference at all. it is probably wishful thinking on your part to think that it will get better or resolve. But maybe refreshing this post will prompt more responses.
Do you have Graves’ symptoms to go with your suppressed TSH? I am assuming you know them all. Usually, when we have too much thyroid racing around, it is a pretty miserable experience, and can be very dangerous, depending on your heart rate and BP.
As you said, you can’t have a scan while breast feeding. I am quite sure that many people who get a dx of Graves’ do not have scans. If we have all the symptoms, tremors, fast heart rate, being hot all the time, increased appetite, and feeling like a crazy person, plus the labs, you should probably be treated. Again, I don’t recall your other post as I am writing this one, but seems to me you can definitely take one of the anti thyroid drugs while nursing. I sure did.
I ended up having surgery, while I was still breast feeding. All went fine.
Shirley

[Bobbi]

#1169454

Let’s ignore, for the moment, the "Graves" diagnosis. What your doctor is talking about is the probably cause of a condition that you absolutely have. That condition is hyperthyroidism. It is diagnosed by blood tests, which are absolutely definitive. If you have too much thyroid hormone, and too little TSH it is hyperthyroidism. It doesn’t matter what is causing your hyperthyroidism. It MUST BE TREATED. Why? Because too much thyroid hormone munches muscle. We LOSE muscle over time. The heart is a muscle. It gets weakened. In addition, too much thyroid hormone can cause arrythmias (heart irregularities) which can be deadly. And, the whole while you are hyperthyroid you are losing bone. So not treating it is not the wisest thing you can do for yourself and for your baby. (Your baby needs a healthy mom.) Hyperthyroidism allowed to persist over time is extremely debilitating.

[Babygirly]

#1169455

Thank you for your replies.

I have since had another blood test which is still going in the right direction. My ft4 level is within normal range (just).

I have talked to my endo to try and figure out what is going on. Post partum thyroiditis does not usually need treatment and that was what I was hoping it would be, seems as my levels are slowly coming down. However, the endo thinks I am more likely to have ‘grumbling graves’. We have decided to not start treatment yet until i get another blood test in 6 weeks.

It is pretty obvious I don’t want graves, I am finding every possible other option. But it still isn’t certain that I will need treatment.

I must admit I feel the closest to normal I have in a while, but I can barely remember what normal is so who knows!

[Author]

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