[MaryI]

#1059628

Hi all-happy New Year! I had my second appt with my new endo and he thinks that it is time to see if I can go without the Tapazole as my numbers have been stable for awhile. In October he thought that I was over medicated so cut my dose in half. I have been on the lowest dose(2.5mg) since Oct and my joints are feeling better. So maybe I will improve without any. A recent ultrasound showed a healthy thyroid.
He is not a believer in long term use as he does not think that there is enough long term data to prove the safety of this drug. If I were older, he would not be concerned( I am 57). I have been on the drug for 2 and 1/2 years now. I sure hope that this is remission!
Am a bit scared in case I slide back into hyper, but will get labs done every 2 months to monitor the situation. I hope this is the final chapter on this thyroid journey!
Cheers, and wishing good health to you all.
Mary

[Kimberly]

#1176271

Hi Maryl – Wow, this is great news!

You might ask your doctor about antibody testing prior to withdrawing the meds. I see that you are in Canada, but the latest U.S.-based guidance recommends testing TRAb prior to withdrawal. The reason is that if antibody levels are still high when the meds are withdrawn, docs here believe that a recurrence of hyperthyroidism is more likely to occur.

Wishing you all the best – please check back and let us know how you are doing…we love to read success stories!

[MaryI]

#1176272

Hi Kimberly,
He did check the antibody level, and there were none. He is checking again and also a another test as I may be one of those who test for negative antibodies. This is rare. Anyway, it is good news so far. I am glad that I listened to my other docs who said not to do anything definative as yet. I sure hope this works! Its been quite a ride. Thanks for this forum!

[jaqeinquotation]

#1176273

Fabulous news!! Giving me hope

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