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Sorry you are having so much trouble. I was on atds for almost a year. Went hypo on them, yes it’s quite possible. I then went off completely after having to stop to have an uptake test. It took me almost another year to go hyper enough again to have RAI.
Call back and give them another number if you can so you can speak with her tomorrow or ask her to leave a detailed message so you can call her back from somewhere else if needed after listening to the message.
You should be getting copies of these labs to keep so you can keep up with your own levels. I have to ask to have them mailed to me but it’s worth the effort as they do get patients confused sometimes.
I will tell you that I was never any good at guessing what my levels were from how I felt. I had no clue I was hypo on the meds. I have had many many tests now and am still not good at guessing.
I hope you find some good answers soon. Maybe you should seek a second opinion if you feel that you aren’t getting good care now. I know it can be hard to find another doctor some places.
Good luck,
ewmbi think they are competent enough over there, but the nurse, well, i’m not so sure about. i wanted info on beta blockers one time, and she really confused me.
i’m definitely getting copies of everything, and i requested a copy of my bloodwork results to be mailed last week when i went in to let them take it.
i’m such a detail-oriented person (really, that is an understatement) and it bothers me when they didn’t have the correct, current dose i am taking in the charts. it makes me wonder……
to complicate matters even further, i’m moving in september, just had a appt. with a surgeon, and i was debating on whether to go ahead and just get it out now—- well, now, i suppose that decision was made for me!
i was so focused on being hyper and giving myself a pat on the shoulder for getting into the "normal" ranges so quickly on the drugs that this overmed. thing completely blindsighted me…..
Hello, me again…
Still hyper, still GD…
the nurse at my endo’s office just called and told me that they ran a thyroid panel along with my blood work (didn’t know that was happening!), and they got the results. i am overmedicated now. i’m supposed to stop the PTU for two days and then when i begin it again in two days, i will decrease it. she says i’m overmedicated at my current dose, but the last time the endo told me to take my adjusted/post-regulated-to-normal-range dose, i guess she didn’t write it down b/c the nurse told me i was still taking 400 mg/day……i stopped her and corrected her on that–that ended in late June!
So, while she confers with the endo to see what i’m supposed to do, i’m really confused. she told me she’d call me tomorrow, but i will not be here to get her call. i’m not exactly looking for dosing instructions from anyone here, but what the heck is going on with me? is it possible to go hypo completely on the ATDs? are they trying to get me more hyper again?
i have been way more hyper-feeling lately, but i thought that i was ok. or at least approaching how i was supposed to feel.
tell me this all gets easier to understand and muddle through……
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