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  • Marlan
    Participant
    Post count: 6

    I have had left eye TED for 7 months now. My eye protrudes, waters constantly, and is blood shot and very grainy. I’m euthyroid. I’ve failed prednisone therapy and now my regular eye doctor is recommending decompression surgery. From what I read about this surgery, there are many draw backs. I’m going to see the surgeon, but I’m thinking I will not have the surgery already. The reason is that I don’t have any vision issues and am thinking it would be better to save this surgery for the future if I develop vision problems. Also I guess in the back of my mind I am holding out for going into the "cold" phase and my eye will improve in the way it feels and looks. Anyone out there have any thoughts about this? Thanks

    Kimberly
    Keymaster
    Post count: 4294

    Hello – Some patients do see an improvement in symptoms as they move out of the “hot” phase and into the “cold” phase. Therefore, OD is not recommended at all during the “hot” phase unless your vision is threatened. The most common scenario where vision is threatened occurs when there is compression on the optic nerve. I attended a presentation earlier this year where one doctor noted that this surgery might also be done during the “hot” phase if the bulging is so bad it’s preventing the lid from closing, and therefore causing serious corneal damage.

    For people who have these issues, the surgery is literally life-changing. But if you aren’t having problems, I don’t blame you for not wanting to go through this procedure! A second opinion might be helpful. A good site for referrals is http://www.asoprs.org. (Note: you will need to use your browser’s "back" button after viewing).

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