Viewing 5 posts - 31 through 35 (of 35 total)
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  • Anonymous
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    Post count: 93172

    Hi Ski, the other eye IS affected, inferior and medial/lateral muscles, but not as much. Optic nerve, visual fields, color recognition are all fine.
    I just hated to be pushed in a corner, have the OD while I am probably still in the active phase, but it needs to be done. There are several cranial nerves in the area, and I am fond of them. I would presume they do their best guess to decompress approximately the same on both sides. I almost took Rituxin, but this event precluded doing that. I did have a course of metholtrexate which made no difference. Thank you so much for your response.
    Shirley

    Anonymous
    Participant
    Post count: 93172

    We are monitering the left eye very carefully. If there is increasing decrease in vision, the OD will be done emergently. I have objects outside that I look at every day, watch for deterioration, and I am seeing the neuro-ophthamologist q week until the surgery. Hoping it stays stable. I live alone, have a friend flying from Texas (I live in Seattle) to stay with me post-op. Two of my three kids are out of the country at that time, the other one has a full time job in So. Calif., and I decided, and she is fine with it, that she will come some other time, when we can enjoy the Seattle weather.

    Sjefferys
    Participant
    Post count: 15

    I want to know how to find the right doctor. What should I goggle to find a doctor to help? I had the decomp and work with my dr past 3 yrs. for some reason I don’t feel she is the one. Her office has turned more to skin, BHRT nothing to do anymore with GED. Any suggestion finding a second Dr to help me?

    Anonymous
    Participant
    Post count: 93172

    Do you still have Grave’s, or TED that is being followed, and treated? Are you having symptoms now? If you have a primary care provider or an endocrinologist, I would ask that doc to ask around, see if he/she can provide a couple names of docs who are ophthamologists who are known the area for their knowledge of Grave’s. If you live in a place where there is a large medical center, or a university hospital, I would call the eye department and ask the same question. Where do you live? It is possible that someone on this site knows of one, but I am not sure if the site rules allow mention of doctor’s names. When I finish this email, I will look up the rules about that. From your email, I am a little unsure of what you are looking for.
    In my experience, I did the things I mentioned above. I asked for all docs in the community who were familiar with Grave’s. Not sure if this helps, maybe the moderator/facilitator has some better/additional suggestions.

    Ski
    Participant
    Post count: 1569

    Look at doctors affiliated with this organization [url:1n4kl63o]http://www.asoprs.org[/url:1n4kl63o]. They have specific training that’s helpful to TED [Thyroid Eye Disease] patients (by the way, TED is the same thing as GED, just a new name since patients can have it without having Graves’ thyroid disease).

Viewing 5 posts - 31 through 35 (of 35 total)
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