[Anonymous]

#1163514

what is it about rai that frightens you?

[Anonymous]

#1163515

the doc says its not good for me at a young age.
he says i could have serious problems from it.
plus…after reading this BB i dont want RAI. looks like theres more bad than good.
so ill take my PTU like it says.
doc says things dont look so good for me right now. and RAi would just make things worse for me.
Sue

[Anonymous]

#1163516

Sue, their is a book called The Thyroid Glad -A Book for Thyroid Patients
by Joel I. Hambuger you might get some more help from this book ,but
the Doc always know best ,right.

feel better -steve

[Anonymous]

#1056469

ready for this?
why is it that Karens doc told her to stay away from iodine and mine said have fun, live to the ultimite, knock yourself out kid? why was she told to stay away from it and i wasnt even warned?
why is it that people who has had Graves Disease for 3 months feel worse than i do and i have had it for 2 years?
why is it that people say go get RAI when they feel like crap themselves from having RAI?
some girl who was new to the BB emailed me and told me about my positive thinking post. she said after reading this whole entire BB she was scared for her life. does that say something here? she said she has no hope and no outlook that this disease will turn better. all i could do was cry.
maybe i am losing my mind. im tired of sorrow and a river full of tears. im tired of the aches and pains. im tired of GD completely, but i know something good has come from this. i met all of you. i made new friends.
all i want to do is laugh.
Sue

[Anonymous]

#1163517

I am keeping a sleep log. I adjusted my synthroid from 1.25 to 1.00 two weeks ago and I slept from 8:30 am to 12:00 noon today and yesterday I slept from 2:00am to 6:00 am (This means I was awake for 26 hours.).
I am not sleeping now and really,….When I tell people this, they think I lay in bed and fade in and out. I vauguely remember what that was like.
How long before I should start sleeping????? or complaining???

This disease does actually have some advantages…As I got sicker I started playing the piano which I hadn’t done in years ( at least regularly) Rather than enter contests because I was too tired to clean or move around and too strung out to sleep, I just played all the time. It is the only way I can keep calm….I decided to go to school to study music and am “rapidly progressing” at this skill. I’d rather slow down but hey maybe I can get something out of this frustration. I need to find a way to stay focused on what I am doing though. I am halfway through a song and wondering if the trash was taken out!!! Weirdest thing, I can memorize these pieces, but I can’t remember the thoughts that just ran through my head. I stop in the middle of conversations and I am lost.

Also, what is a “normal heartrate”? Mine hovers around 80 to ninety resting most of the time and then will thmp up to 100 to 110 but then sometimes it will be 60. I am afraid to take the Inderal because I don’t want to lower a 60 heartrate but I wonder if that would happen or if it would just keep it from jumping up. Maybe it would help me calm down and help this sleep thing.

I am waiting for the sleep medicine to work but that’s so iffy. I think restless legs is when your bodyjust insists on going to sleep but your nerves refuse.

That’s all.

Thanks,

Rami

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