[Bobbi]

#1062542

I’m sorry you have to deal with hyper all over again. I hope you get good treatment, and soon, so that you are feeling better.

[Ski]

#1062543

I’m sure it’s tough to face all of this again ~ the advantage to surgery is that afterwards, there’s no more "waiting game" for falling out of remission, it’s only about replacement hormone, so you don’t typically have the wild swings up and down after you find your best spot. You still need to be checked periodically because our needs can change over time, but there are few ways that you could become REALLY hyper again after your thyroid is removed. I don’t know if that helps much, but at this point it appears as though you’ve only got one choice (with the meds being so unpleasant for you), so I think looking for the bright side of surgery is likely to be your best position, emotionally. There are LOTS of people here who’ve made that choice for themselves, and I don’t recall one of them being sorry they did it. If you have the ability to research and choose a surgeon, you can dramatically reduce the likelihood of having any of the potential difficulties with the surgery, so that might make you even more comfortable. They’re not very common anyway, but any improvement in the odds is a good thing!

[odapoda]

#1018072

Hi again everyone!
Haven’t been able to check in often, but I do every now and then. How is everyone? ” title=”Smile” />

I’m not doing so good.. Fell out of remission not too long ago, and it’s all coming back. All the fun I’ve missed!
It is kind of like all the symptoms I used to have, just doubled. Is this normal after falling out?
I was so much looking forward to finally be kinda normal, and just be like every other twenty year old. Oh well, it’s the graves ride.

But the worst thing is treatment. Unfortunately, I have horrid side-effects from the two drugs I can take, and the doses have to be too small, as I’m currently very underweight. So there’s surgery, they only have those two options here in Norway when you’re young. But I’m scared, like deathly scared. Not so much of the surgery, or the recovery, but going under narcosis.. So much back and forth.

Sorry for rambling, just had to get it all of my chest. But I really wanna know how all of you are doing!

” title=”Smile” />

[snelsen]

#1062544

Welcome, and a quick note, ’cause I am going to bed and have a very earlly flight tomorrow morning. Use the search engine, type lhc11, she has some great posts, and recent surgery. I had the surgery, loved it. I am not sure of your concerns about narcosis. This is an easy surgery when performed by a surgeon who does them regularly, generally about 45 minutes, there is little, not a lot of soreness, basically nothing. IT really is a good thing. Being hyper is TERRIBLE and dangerous!!! REally, this is a great site, you will have lots of conversations with us, and then you can help someone else.
Gotta go to bed now!!! Will write again…also, just put thyroidectomy, or surgery in the search engine.
Best, Shirley
Shirley

[Kimberly]

#1062545

Hello – There was actually a study just released from the University of Wisconsin suggesting that Thyroidectomy should be offered to more patients as a first-line treatment option for Graves’, along with ATDs and RAI. The study found that patients experienced a very low complication rate and rapid resolution of their hypER symptoms. Hopefully, that will help put your mind a little more at ease.

The most common complications with this type of surgery are damage to the nerves around the vocal cords and parathyroid glands. However, these risks can be reduced by using an experienced surgeon who does a large number of thyroidectomies per year.

[Author]

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