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  • Anonymous
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    Post count: 93172

    Denise–
    The numbness/tingling was a miserable aspect as I moved into the
    hypo range. My hands kind of “went to sleep” on me. They were so
    uncomfortable that they made sleeping at night a real chore. They
    also were quite swollen. About a week after I began taking synthetic
    thyroid hormone, the swelling/tingling/numbness magically began to
    disappear. I only have little twinges now. So — I guess it is a
    Graves thing but is temporary — at least in my case. Take care.

    Rosemary

    Anonymous
    Participant
    Post count: 93172

    Hello,

    I was just wondering if anyone has ever experienced a
    numbness or tingling in their hands and finger tips.
    This is the first time I have experienced this and I was just
    wondering if I should alarm my docor now or wait till my
    next endo appointment on the 13th of May?? With Graves it is always
    something, eyes, hands, What’s on next or is it whose on first?
    Any input is appreciated.

    DD

    Anonymous
    Participant
    Post count: 93172

    Hi Denise,

    Welcome to the club! I first experienced the tingling and numbness in my hands after several months on PTU. I felt that I was being kept too low for my system. These symptoms disappeared as soon as I was off PTU, but have now reappeared with a vengeance now that I am hypo after RAI. They seem to represent one of the first signs of Hypo as far as I am concerned. I would mention it to your doctor next time you see him.
    Brenda

    Anonymous
    Participant
    Post count: 93172

    Denise, I had tingling and numbness in my hands, especially right one, for about two months upon awakening before I was diagnosed with Graves. It went away after starting Propanolol and PTU, and now after eight weeks on PTu it’s back11?? An iteresting note, I saw a chiropractor about the tingling, snd he x-rayed my neck, from the front, in late November. Said I had bone spurs on two vertebrae, one very close to location of thyroid, as I recall. The thought has occurred to me to wonder if x-ray can stimulate thyroid and precipitate onset of Graves? I asked tgis of the endo and he said no, but I still wonder. Anyone with any input? Love and blesings to all, Sharon

    Anonymous
    Participant
    Post count: 93172

    hello, denise

    i had rai in sept , i still get tingling in my hands ,arms,feet,and legs
    i guess its something do to graves are maybe stress are maybe im
    just a hypocrondiac.

    feel better-steve

    Anonymous
    Participant
    Post count: 93172

    Thanks for your e-mail. It must be hard for a male to deal with all of this stuff,
    side effects I could not imagine my brothers going through this. *I hqve been
    working on the computer more than usual. I just hope it is not a relapse
    of a carpal tunnel. That is why I wanted to see if it is part of the graves.
    Right now I am hyp0- not hyper. I thin I had more energy when I was hyper
    before the RAI in 6/93.

    Take care—

    Dee

    Anonymous
    Participant
    Post count: 93172

    First time visiting the bb. curious about others’ experiences/symptoms with Graves’. I was diagnosed nearly two years ago, and want to believe that as long as I take my meds daily, I won’t have to think about my diagnosis. currently experiencing tingling in my feet, as if they are just beginning to “go to sleep”. Also occasional tingling in my face. Anyone with similar experiences?

    Anonymous
    Participant
    Post count: 93172

    I have the tingling problem, too, Kat. Mine is mostly in my hands and lower arms, although it sometimes occurs in the feet. What is your treatment status? I’m on PTU and propranolol; have been for about 2 1/2 months. Last week several people posted about it, so this seems to be common.

    Anonymous
    Participant
    Post count: 93172

    I too had the tingling problem in my hands, lower arms and feet.
    Sometimes they felt “asleep”..My Dr. said it could be caused by
    low thyroid. Since I had RAI in Dec. 96 I haven’t been taking any
    thyroid hormones. My last blood tests showed that I was indeed
    low thyroid and I am now on a.025 dosage of Synthyroid. I will report
    later if the tingling sensation improves.

    Kate

    Anonymous
    Participant
    Post count: 93172

    This started happening to me after I started med’s. My endo said that it couldn’t be related to this. I find it odd.

    As I’ve been on the medication, I am experiencing less of it. The first two-three weeks seemed to be the problem time.

    Thoughts on this?

    Anonymous
    Participant
    Post count: 93172

    Happened to me after starting on meds, too. I’ve been on meds for 2 1/2 months, and it started after about a month.

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