[runlacie]

#1069392

Hi ewmb, well that totally stinks and I’m sad to hear your numbers! So, your endo sounds like if you take the ATD, he thinks you’ll eventually go normal? Or does he plan another rai? I’m sorry. Yes, I’m learning that we do a lot of sit and wait. And I’m terrible at it. Feel better soon, K?

[ewmb]

#1019123

I got my numbers back today from my doctor. I had RAI 11 weeks ago and am now more hyper on paper than I’ve ever registered. My TSH is under .01 and my Free T4 is way up.

Has anyone else ever experienced this? My endo says that he had with other patients and he wants to put me back on methimazole 2.5 mg for a while. I have been off it for more than a year and don’t really want to take it but I will so I can function. He says that in a few months he expects that I won’t need to take it.

Not the news I wanted to hear…………….. but have a great husband who says he’ll stop by the drugstore tonight for me and get it so I can start taking it.

As SKI mentioned in another post we do what we have to and then we sit and wait.

ewmb

[ewmb]

#1069393

Lacie,
I think he wants to give the rai time to work, the full six months that everyone seems to think it still has an effect before talking about another RAI. He sent my last info etc. to my local GP and I can go there and get blood work done if I feel something has changed. My sitting and waiting is tired out too………. Hate this stinkin’ disease today.

Thanks for the nice words.

ewmb

[Hopeful23]

#1069394

geeeeeez. You cant win can you. I feel so irritated for you. This thyroid crap is for the damn birds. Im sick of it all. Ugh.

[hyperm]

#1069395

Hey,

Sorry for the disappointment indeed a bummer ” title=”Sad” /> ” title=”Sad” /> ” title=”Sad” /> ! However, when I was all jitters for my op etc… I was offering it all up as Emily had said but you know what there is one person on this board who has become my GD soul mate and through all my problems/ pre-ax probs etc… I thought of her and how she can’t afford meds and having such a hard time and I got through it all with just the thought of her! Yes you know who you are!!!! She has such a crap time at the moment and she sat on facebook for a whole day – time difference and all waiting to here if I got my go ahead for the op – how lovely is that???!

So yeah it is a disappointment I can imagine after all you have been through but if it helps think of the people out there who can’t even get that treatment. It certainly helps me even though I am blubbering tonight I am thinking of my GD soul mate and how hard she is having it just now.

Hope it all settles soon!

Lots of love and prayers

xxx

[ewmb]

#1069396

Hyperm,
I talked to my Mom today too. It does make you feel better doesn’t it. Thanks for the reminder about those less fortunate. My husband came home a little early from work and made dinner. My teenagers are great and seem to know when to stay out of my way and when to come and get/give a hug. My oldest is going to college in a few weeks and I really want to be able to go with my husband to take him there and help move him into his dormitory. I guess I can just tell myself that I will be able to go and see if that helps. My daughter told me to think positively at dinner.

Hopeful- can you get to the library and get some books on hypo that you can read? Sometimes reading something away from the computer can be easier for me. Keep looking forward to August and school starting. The six weeks until your next blood work will fly by if you can keep yourself busy. I know it’s hard to change but you’ve really come so far already.

Hope that tomorrow will be a better day for both of you.

ewmb

[RhondaG4]

#1069397

Some of you know what a time I’ve had….here is a little something that I hope will make all of you smile when your feeling down. It is the lyrics to a song from a T.V. show when I was little here in the USA. Now it would be cool if we could all get on a conference call and sing it together!!!!!!!!

Gloom, despair, and agony on me
Deep, dark depression, excessive misery
If it weren’t for bad luck, I’d have no luck at all
Gloom, despair, and agony on me

We figured she was rich, loaded to the hilt
And we figured she had class like the Vanderbilts
‘Cause we had heard for years how she was so well reared
How was we to know they meant the way she was built

Gloom, despair, and agony on me
Deep, dark depression, excessive misery
If it weren’t for bad luck, I’d have no luck at all
Gloom, despair, and agony on me

Hugs to all of us…Rhonda

[Hopeful23]

#1069398

ewmb,

Yeah, I think I’m going to have to find time. I really need some positive reading. (If thats possible) Something along the lines of HYPOTHYROID= Millionaire by 12’noon tomorrow. LOL. I mean its hard to get out without having an anxiety attack. I was fine until I realized how HYPO I was. My dr. didn’t inform me on that level. They called said "your hypo, we are calling in your meds" Take generic if you cant afford synthroid. I said what was my TSH and what are normal they told me and all I thought was wow that is HYPO but i didnt know I should have only been like 5. somthing for a safe hypo. I don’t know it just pisses me off that my dr said bloodwork at end of july when it was end of June. Why couldn’t he said two weeks or next week. I could have been caught at an earlier hypo stage now I don’t know what to expect ” title=”Sad” /> its like hyper all over again just opposite sides of the disease. I don’t know how the Graves anti bodies play into me being hypo or anything and I dont have an appt to see my endo for another two weeks nor do I have blood work scheduled for 6 so I guess I just pray I wake up every morning feeling a little more ME. I guess thats all I can ask for these days cause yes others are struggling more than me but at the same time I am too and so are all of you.

Sccccccreeeeeeeeeaaaaaaaaaaaamiiiiingggggggg

[Ski]

#1069399

It’s really impossible for them to know when hypo will hit, so try not to blame the doctor’s office too much. After I had my first (far too small) dose of RAI, my doctor left me a standing order at the lab in case I felt hypo so we could catch it early. I was in there every few weeks, absolutely SURE I’d gone hypo, but no. No one can know for sure without blood work, and even then what you feel may not be hypo, so that’s part of the trouble with this WHOLE thing…..

[Hopeful23]

#1069400

Yeah, your right. I need to just except where I am now as to where I was on May 11 2009. I get out of hand with my emotions and tend to fly off the charts LOL.

[ewmb]

#1069401

Well I started the methimazole again last night. I hope this doesn’t interfere with the dying of my thryoid.

If you have taken methimazole after RAI let me know how it went and how long it took you to go hypo if you did.

Thanks,
ewmb

[hyperm]

#1069402

Ewmb – how are you today??
xx

[ewmb]

#1069403

Hyperm,
I am at work so that is a change. I won’t be here long though. I feel like I already need a nap at 9:45 am. I hope this methimazole does help but I know that it’s all a waiting game. I am taking it in the evening this time. When I last took it, more than a year ago, I did so in the morning and it always took a few hours to seem to kick in.Glad to hear that your neck feels better.

Take care today.

ewmb

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