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  • Anonymous
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    Post count: 93172

    HI Sharon

    Just wanted to say Hello and welcome.

    :-) Renee

    Anonymous
    Participant
    Post count: 93172

    Hi Sharon!

    Welcome! Sounds like you’ve come pretty far on the road already, congratulations. :-)

    Typically the intent of the ATDs is to get your thyroid hormone levels under control and see if you are one of the people who can achieve a remission after using them. There is a certain percentage who can (40%, I think that’s the neighborhood), but it usually takes between one and two years on the methimazole to come to a point where you can stop taking the medication and see if remission has occurred for you.

    If it doesn’t work in the first try, it’s even rarer on a second try, so you would need to pursue a different treatment.

    The ATDs can be extremely valuable because they are the quickest way to normalize your thyroid hormone levels, and that helps your body begin to heal. Once you have reached normal thyroid hormone levels, then you START to heal, so don’t expect that a normal blood test should mean you feel perfect. Still, you should be feeling progressively better from that point forward, and the best thing about that is then you can really look into the facts and circumstances of Graves’ Disease and treatments and evaluate them objectively. When we’re hyperthyroid, it’s very difficult to concentrate or focus, so it’s very helpful to get out of that state.

    In the meantime, cut yourself some slack, do only those things that enrich your soul, feed and nurture your inner self. We have found that MOST of us were “Type A” “caregiver” types in our former lives, and we need to learn how to say NO, I CANNOT. It seems like it’d be easy. It’s not. Fight through that and learn how. It’s worth it.

    Feel free to ask any other questions you may have, we’re here to help!

    ~Ski
    NGDF Assistant Online Facilitator

    Anonymous
    Participant
    Post count: 93172

    Hi, I’m Sharon and I’m new to the group. I’ve been diagnosed with hyperthyroidism after I wasn’t feeling very well and not sleeping very well and had very dry eyes. My doctor did a blood test on me and put me on a beta blocker to slow my heart rate down and then told me to see an endocrinologist. I’ve been seeing a great endro, he had me do the uptake scan and blood work and now he’s put me on Methimazole and he told me to see an eye specialist because of my eyes, he diagnosed me with Grave’s and TED and I’ve been put on Prednisone to help with the eye swelling, dry eyes and double/blurred vision. I’ve been on the Methimazole for a couple of months now and I’m starting to feel better. My new lab results came back and my TSH level was low like before but my T3 and T4 are improving. I was just wondering what to expect in the next few months and does any one know how long I can expect to be on the Methimazole.

    Again hello to everyone and take care.

    Anonymous
    Participant
    Post count: 93172

    Hi Sharon! (Yes, I know, little slow on the welcome wagon – still dragging). I was never on medication except Atenolol (what a Godsend). I was one of the ones who chose RAI instead. You will find people who chose all three different routes, there will be positive and negative about all three. Like Ski (think it was Ski – could be Bobbi lol) said, its YOUR choice.

    I have had my good days and some bad days. This morning was a good one. Woke up restful but that forgetfulness still gets me. I have to buy another coffee mug because, silly me, I left it on top of my car roof then drove away. Didn’t realize it till I was on the highway looking for my coffee (decaf of course). I used to think Graves’ was a death sentence (tired all the time, just blah on life) and now its like a new begining (ha especially with the memory loss – every day is a new day). I may not have the energy YET to accomplish everything I used to, but I also know there will be a day I will be able too.

    Loving life since FINALLY this weight is starting to come off. Still wished I wasnt the 10% that gained weight hyper but oh well. I think alot has to do with the fact my body is starting to normalize and I eat ONLY healthy lately. I noticed if I eat something (starches – love my pasta) that isn’t like fruit and some veggies, I am dragging an hour later. I read all the books listed in the reference here and boy, wonderful reading. Still have questions but I’m going to wait because I am going to get my answers talking face to face at this conference coming up. Moderators, is it alright if I printed out the upcoming Conference details on your main page for my next visit at my endo’s? I want to also post it anywhere I can (might get a lot of Coloradoans there :-) )

    Kim

    Anonymous
    Participant
    Post count: 93172

    Yes, you can spread the word about the conference. Please print out some flyers to take to your doctor and anyone else that would be interested.

    FYI – A revised flyer with more information will be posted soon.

    For those of you that have not been to a conference, it’s an amazing experience. I just love being around other people with Graves’ disease. There are eductional seminars and support group sessions (which I love) but my favorite part is just visiting with the other attendees.

    We are still working on conference details so the registration form is not available just yet but will be in the near future.

    Please join us in Cincinnati in October.

    Linette

    Anonymous
    Participant
    Post count: 93172

    Sharon,
    I am new to the post and will be scheduled for RAI. I have not taken any medications, not for the palpitations or the tachycardia. I hate drugs, and their side effects. I have an appointment coming up for my eyes. They do not appear to be bulging, but they really bother me; especially in the morning.
    I would like to know how it has been for you thus far after the RAI. Or for anyone who has taken the RAI and time has gone by.
    Thank you
    Sheri

    Anonymous
    Participant
    Post count: 93172

    This is my first time on this BB. I have been living with Graves Disease for over 4 yrs now. Like alot of you I believe it was with me sooner than the diagnosis. I did RAI and believe it saved my life. Most of the time I feel very good and can function like I need to & want to. But in the beginning I showed the “ugly” side of this disease in ways of anger,paranoia,confusion and fatigue. I almost split my family apart with my absurd behavior. I did seek counseling which really helped. I think the hardest thing for me is the change in personality which still to this day can rear its ugly head sometimes. It is something I have to try to deal with while interacting with co-workers, friends & family. I just finished reading “Graves Disease In Our Own Words”. It was absolutely wonderful and I highly recommend it to anyone who wants to know more about GD. I reside in Arizona and am looking for a support group. If one is not available perhaps I could start one. Does anyone have any ideas on how to start one?

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